New member - new diagnosis

Hi KU

Sorry to hear but at least looks like caught esrly although not sure if u have had a biopsy which would show a Gleeson score.

As far as treatment goes best to look online to see the pluses and minuses for each treatment

Surgery can produce ED and urinary issues so u need to contemplate that although not everyone has lasting side effects.

RT is simpler although u may have to have HT as well which can cause issues but these tend to go away when treatments are over.

Good luck and see what others say

Steve 

Hi KU63 and welcome. Yes it is a minefield but you need to walk slowly through it, gather and take in adequate information and when you reach the other side, make your decision on which route you would prefer to go down. All routes have advantages and disadvantages. Assume you have had a biopsy and you have a Gleeson Score?? You will find good advice on this forum. Also suggest you have a browse on the prostatecanceruk website where you will find lots of informative publications on options and what you should take on board which you can download. The side effects are really the worst case scenario. Not everyone experiences them and the consequences are varied.

Hi Static, thank you for your advice. I have had biopsies and have a Gleeson score of 2, I was told that I need to have 'radical' treatment as monitoring is not an option. I was told I have choices - RT and hormone treatment or surgery.

I am trying to read information and I will check out the advice you have recommended.

It was a good that I had asked for the PSA test otherwise I would not have known.

Hi Steve, I have had a biopsy and have a score of 2, as you know it is from 1 to 5. I asked for a PSA test and it showed up positive, so hopefully caught early. As you say both have side effects.

Consultant advised to have surgery because I am young and fit, still not sure and peoples experiences and stories are varied with their experiences and success.

Don't forget surgeons will always advise surgery so do look at RT as well just for comparison

Also something not right with that Gleeson which is normally 6-10.

Are u sure it's not Pi rads which is 1-5

Steve 

Hello KU63 Late to the party as usual but welcome to our little group.

You are going to have to make a very hard choice between HT/RT and Surgery. You need to make a list of the pros and cons of each route and consider your own feelings about each route.  

Many of the "regulars" on the forum have a diary of their personal journey - I will start you off with mine - it's the HT/RT route and started 21 months ago - it's close to a happy ending. if you click on the icon of the beach next to my user name you can read my journey (I had the odd issue on the way!!).

I am more than happy to answer any questions you may have.

Best wishes - Brian.

My husband had a prostatectomy last Friday at Addenbrooke’s Hospital 

Age 63

Pirads 5 PSA 14.1 Gleason 3+4=7 with a Cribiform pattern but contained within the gland T0 N0 M0   Bone scan clear 

We saw the consultant oncologist radiologist who pronounced Dave as being officially young and urged us to go for surgery saying he wasn’t advocating his specialty!! We thanked him for his honesty and post surgery my husband is doing extremely well. He was in hospital one night and up and about the next day home in the afternoon. His surgery was done using the Da Vinci Robot so minimally invasive. Hardly in any pain but what pain he had was controlled with paracetamol. He was able to move his bowels on day three with no problems and as far as incontinence is concerned is it very light and no trips to the toilet during the night.

We are only on day 10 but so far so good. We see the surgeon in 6 weeks time for a PSA result and news of how the op went regarding margins etc. We are hoping for the best but we know with surgery at least we have more options if the news isn’t what we hope for.

We would not hesitate to recommend surgery and it continues to be the gold standard treatment for fit youngish men

i think this post says it all for us

i wish you the very best

Hello Beverlily

What a great news story for this forum - I am so pleased for you and your husband that the surgery has gone well and he's recovering well with very little in the way of issues.

Whilst I am in full agreement 

Beverlily said:

with surgery at least we have more options if the news isn’t what we hope for.

It has to be said that for many of us surgery isn't an option and we have no choice but to take a different journey to find a potential cure.

I am so glad for your post though because it will inspire people who have the choice to consider the surgery route as well as any other options. Once again thank you for taking the time to post. I hope the results in 6 weeks time are good for you and that his recovery continues. I look forward to an update in due course.

Best wishes - Brian.

Hello Millibob

i always enjoy reading your very informative posts and they are an inspiration to all of us on this forum. I know when my husband was first diagnosed your posts gave me much hope!

I am in total agreement with you regarding the fact that some of you wonderful men out there don’t get the choice to have surgery. My husband has been incredibly lucky so far as to have had that choice. 
I will indeed keep you all posted as to his progress in the coming weeks

Best wishes 

Beverley

Aw - thanks for that Beverley - it means so much. I am only here because I had so much help from forum members when I was diagnosed - and I don't want anyone to be in the situation where they just get a diagnosis and don't know where to turn. Thanks again for your post. If I can just help one member - then that's great news, the more I can help the merrier - and I do so much love happy endings!

Thanks again - My best wishes - Brian. .