Small cell adenocarcinoma

Hi Always Hope - Welcome to our club - and to the Gleason 9 club - I am a relative new member to the latter.

So sorry to read of your husbands issues but there are some people on here with a diagnosis of Small Cell Adenocarinoma. I am sure I have read some posts about it. have you tried searching using the new search facility at the top of the page.

I hope you get the answers you are looking for.

Kind regards

Brian.

Hi Alwayshope, I read your profile. That is some journey you both have been through. You are clearly both fighters as you say. There will be others on the forum who have experienced small cell adenocarcinoma. I do know these rare types are very aggressive and it frustrates me when people focus on PSA alone as theses rarer cancers don’t express high PSA levels.

I hope the chemotherapy does a good job and that SABR can target the lymph nodes etc. 

All best wishes to you both and hope more will answer regarding small cell adenocarcinoma.

Thanks Millibob and Ido4. We have accepted that our time together is not as long as we would have liked. Fortunately we both have a positive attitude and are determined to live life as full as possible. We are lucky that we were able to do a lot of travelling before the bombshell hit and have these memories to live again together. The one thing that has helped get us through is a good sense of humour and will start another thread on this topic for a bit of light relief.

Funny you should say that - I have replied to a thread " That's Life" this morning saying just howIi feel - it's in the Diagnosis and Treatment section. 

I have been in trouble on here for being too bright and breezy but life is short and I had a wake up call when I nearly died at he end of 2021!!

Keep posting and Carry on.

Best wishes

Brian.

Brian

Your bright and breezy attitude lights up my day. Keep it up!

Cheers

Cliff

Everyone handles the diagnosis and treatment in different ways. Ours is to have a good bawl, pull ourselves together and then just get on with it. My grandmother used to say 'Smile and the world smiles with you, cry and you cry alone'. When feeling down I have looked on the forum and realised that there are many people going through exactly the same emotions and fears, and the members here have provided the hugs I have needed, albeit at a distance even they didn't know it because I wasn't a member for a long time. Fortunately all the consultants have got used to our sense of humour and work with it as this is our way of coping. We sit on our terrace every day, even in winter, and say how lucky we are to live in a quiet village, with a view of the sea and watch the world go by , a cup of decaf and a little goody to go with it. After all you have to eat small and often and a little bit of what you fancy does you good -no not that, don't get excited as the hormones have done their work.

My background is as a research microbiologist used to reading and writing research papers. My first instinct was to search the subject of small cell adenocarcinoma, find the treatment route and get to the other end. Wrong. I soon found out that every cancer patient's journey is individual. It has led to some interesting discussions with the medical oncologist as to the order of treatment and we actually went against his recommendation in that hubby had radiotherapy first as I didn't think he was well enough at the time to cope with chemo. The oncologist has subsequently agreed that this was the best route. In Greece we have a lot of say in who treats us, and where, so the choice of medical oncologist, urologist, radio oncologist and nephrologist are ours -more googling to find the best place to be treated and by whom. We have an NHS equivalent  system here but most people pay privately which speeds the system up considerably. The blood results are normally back within 2 hours and scan results are given at the end of the procedure. We have the private phone numbers of all the doctors who usually get back to us the same day if we have a problem. With consultants costing about 40 Euros and MRI's at 36 Euros this is, for us, affordable. Luckily all drugs for life threatening illnesses are free. I sympathise with you all as I know how bad the 'scanxiety' can get, having to go for the 3 monthly look-see. At their worst my husbands masses measured two oranges so we eagerly waited to see if there was a reduction and whether it has spread anywhere else. PSA numbers for us are not a good indicator because of the nature of the cancer, however velocity indicates if resistance is occurring, hence his current journey with chemotherapy. Doctors and treatment are excellent here but hospice, Macmillan and Maggies type support are non existent. The UK remains our competent state as far as health matters are concerned -you can read on my profile the battle I won with the DWP to ensure that those expats needing it got it, There is a desperate need for ancillary support for cancer patients and their families which so far is not recognised here.

My first husband died of lung cancer. My second husband died of a massive heart attack. My third husband is living with an aggressive cancer. This definitely has shaped my attitude. Life is too short to worry about what has happened. Take each day as a new opportunity and live it to the best of your capabilities. Enjoy each others company and gather friends round you.

Good luck to everyone on this journey you never wanted to be on. Keep fighting.

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