Hi,
I've just been diagnosed with stage 3 prostate cancer that has spread to my pelvic bone. I begin hormone therapy next week, and radiotherapy in a few weeks time. My psa was normal, and I had no symptoms until I developed pain in my lower buttock area. The cancer was then diagnosed following an Mri scan, Biopsy and bone scan.
Has anyone else gone through this, as I understand it's incurable, but treatment will slow down the spread.
Obviously I'm concerned about living with this going forward, and how much time I could have left.
Thanks
Hi Maximillyan,
Great name, same as my grandson's.
Welcome to the forum which you probably never thought you would join.
Firstly, it would be good to know a little more about you. How old you are and if you have been given any scores, like Gleason etc.
My husband is 78 and two years ago was found to have a psa of a staggering 1200. He was due to have an MRI initially but after a digital examination, the consultant rather brashly removed the glove and said to my husband you have advanced prostate cancer. This was a huge shock as all this happened within two weeks of his first appointment with the gp. He was immediately put on hormone treatment injections initially once a month, but as the injection site was too painful, he has moved to three monthly Prostap which he tolerates well. His pc has also spread to the pelvic area, sternum and thighs.
You are right, it is at present incurable but be assured it is infinitely treatable. You will hear lots of stories from the wonderful guys and partners here and they will be able to give you more information about their own journeys. However, my husband, despite several other major health issues, is still with us two years from diagnosis. The hormone treatment does seem to have different effects to each person but the major one with my husband was initially fatigue plus a sudden interest in making apple tarts!! Whilst I am joking a little, it is true he took a sudden interest in the latter so I showed him how to make one from scratch. Unfortunately, this passion did not last long and so now we have to make do with bought puddings!!
It may possibly affect your moods and it certainly did my husband. Some guys here will say they have suffered hot flushes, but as a post menopausal woman they don't get any sympathy from us 
. My husband is the opposite and still sleeps under a 15 tog duvet with a weighted blanket on top, don't ask me how but we are luckily in separate rooms. I would think the most common side effect is the tiredness and obviously your body will need to adapt to the lowering of testosterone.
I am going to leave it there and let others post, as I know they will, but do not feel alone in this we are all here to support each other.
Best regards and keep us posted
Gina
Hi Gina,
I'm 57, and I was given two scores, the first being from 1-5, which I was 3, and from 6-10, which I was 7. I'm not entirely sure what they mean as I only had the telephone conversation yesterday, and probably didn't take everything in.
On a lighter note, I can look forward to making puddings in the near future then 
Kind regards
Okay, that will give the other guys something to compare with their own scores.
My husband was never given any so we feel slightly deprived!!! If you have a significant other, I always suggest that they go with you to all your appointments if possible. It is so easy to either mishear (my husband is dreadful if a foreign accent is involved) or simply not take it all in. I have joked before that I end up doing all the talking as he gets so confused and let him sit in the corner playing with the toys!! .
