Newbie

hello Deb, is a good idea if you update your profile with the dads results, PSA, T M N O score and and Gleason grade. People can read and comment then. Have a read of my profile for my journey and questions just message me. 

It’s a traumatic time your going through at the minute but you’ve come to the right place, everyone is lovely and really helpful. Has your dad started on Hormone tablets yet ?  I wish your dad all the best. 

Thank you so much Paul. Will check out your profile and update mine. Take care x

Hi Deb - Welcome to the club!!

I have just read the information you have posted regarding your dad.

The Prostate Cancer cells live on testosterone and if you dad has his testosterone reduced by the hormone treatment - the cancer cells can't grow - hence the low PSA score.

You did say chemo does not suit your dad - has the oncologist suggested any further treatment - Radiotherapy?

As Paul above has said everyone here wants to help as we and our partners have / are going through this and if you have any questions or even just want a chat, come back to us.

I wish you and your dad all the best.

Kind Regards - 

Brian.

Hello Debbitydoodah

I remember going through chemo, not a good experience, some have it easy others not so, the next step would be either arberaterone or enzalutamide both are good medication, has he had any radiotherapy yet, this reduces the prostate and helps keeping down the PSA, try and go with him on his next visit to urology, have a few questions ready, Two heads are better than one.

Stay safe

Joe

Hi Deb,

My husband has stage 4 pc too which has spread to some bones. He is on hormone therapy only and is still going 'strong' two years later. I put it in quotes as he has many other health problems.

Best advice I can give is make sure someone goes to all the appointments with him, as it is quite easy to either mishear or misunderstand some of the information given during consultations. 

Also, joining this forum is a very positive step as you will probably find more real stories, experiences and support here than anywhere else.

Best regards

Gina

Thank you for replying.

My dad is 86 and before diagnoses was really fit and well for his age. Unfortunately, Chemo made my dad extremely poorly and he had to stop.  

Hes under Clatterbridge Hospital but as hes no longer on Chemo he just has a 3 monthly phone appt with them. They would not reccommend Radiotherapy. Hes continuing with HT but I can see him deteriorating, loosing weight. 

Thank you so much for info on testosterone and prrostate cancer growth.

Kind Regards 

Deb

Thank you so much for your reply. 

I will ask about medications on Monday.  I will write a list of questions before then.

This forum is proving invaluable in pointing me in the right direction.

Thank you again.

Take care and Kind Regards

Deb

Thank you so much for your reply.

You are totally right about this forum.  Ive learned more from here in the last week than I have from anywhere else.

My sister has been going to hospital visits but Im sure info is unintentionally lost when being relayed to the family.  I have just started to attend Drs appts with him.  I think we need to take some notes during appts from now  on to be sure we dont mishear orforget anything.

It is so encouraging to hear of your husbands 2 years on HT alone.

Thank you again.

Take care.

Kind regards

Deb

Hi Deb, I am under clatterbridge also, I live in Widnes and attend St Helens hospital every 28 days they are great in getting back to you if you have questions . Has your dads consultant not offered Enzalutamide or aberitone 

Hi Deb

It's not a problem - we are all in the same club - the issue is medical advice is scarce and with PC no one tells you anything  - you have to probe.

Bless your dad - at 86 I would stick with the hormone treatment  - enjoy life and although chemo, radiotherapy and other treatments are available - personal opinion - enjoy life as it is without the side effects - I know a Gleason 9 is fast growing cancer (I am one myself)  but you are in that situation where quality of life / side effects of treatment comes into play where do you go?

I have re-read my post twice and it's blunt - but I think an honest opinion.

I may well get shot down by others but people on here know I do speak my mind.

I wish you the best whatever you and your dad do -we are here for you both.

Kind Regards - Brian.