Help.. confused

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Hi 

New here!

my partner over the last 3 months has had a diagnosis of T3B N0 M1 Gleason 4+3 when he first saw a urologist.
He’s just had he’s first oncologist appointment on Monday this week. He’s previously had a MRI, CT scan and then a bone scan with radiation. The consultant on Monday told us that these scans have are inconclusive re the bone metastasis but he will be treated or shall I say over treated with the conclusion that he does have it! 
Has anyone else had this same situation it might not make a difference in terms of treatment but it does in terms of life span surely….

I should add that he also had a full blood count/PSA on Monday and he’s APL levels are within normal range. I thought this could be a marker for bone cancer?!

Any advise would be greatly appreciated 

  • Hi Maccers

    You have joined the right place for advice and support.

    Just a quick response to say my husband was diagnosed two years ago with metastasised prostate cancer. He is 78 and has other health issues. They never mention any prognosis as too difficult to predict. With all the new treatments, whilst it may be too far advanced to cure, it is infinitely treatable. Mine can only have hormone treatment at the moment due to heart problems, but he is still with us two years down the line and a psa of 2.1 at last count from an original 1200. When the cancer spreads from the prostate to the bones, we were told that the treatment will also slow down any related bone cancer as all related to testosterone. It may also help to know how old your partner is.

    Best regards

    Gina

  • Hi Gina

    Thank you for responding.

    He’s late 50’s so relatively young. He has started HT and due to start chemotherapy in tablet form shortly.

    I am pleased to hear that your husband is doing well and I hope that continues. 

    wishing you all the best 

  • Hi Maccers, your partner is relatively young, but if he is in reasonable health he will probably be able to tolerate all the various treatments available. There are many fabulous guys who will be about to jump in here and who all have varying stories to tell. You could not have chosen a better forum to join and before long. Some guys are younger and some older and many have endured treatment for quite some time but are still here, still strong and willing to share their stories. 

    I am willing to bet that you will hear from at least two people by tomorrow if not more who are willing to share their stories and offer support. It is not just the men, but us wives and partners too, who have all benefitted from joining and sharing our worries and journeys.

    Best regards
    Gina

  • Hello Maccers, welcome!  I’m sorry to hear about your husband’s diagnosis and realise that, if you are like many of us wives, tou will be reeling with a whole load of different emotions.  My husband is 75 and was diagnosed last autumn with prostate cancer T3a M0 N 0. Gleason 4+3=7. From the MRI they could not be sure whether one of the tumours was bulging against the prostate wall or had broken through. The biopsy did not pick up any cancer cells from tissue surrounding the prostate and so I queried whether the grading was correct. We were told that they always err on the side of caution and over grade as well as over treat.

    I hope that all goes well for you and your husband with the treatment. Do let us know how things go and, as Gina says, there are lots of people posting here - all different ages and all with different experiences. 

  • Hello Maccers

    Welcome to the club - I know you don't want to be here but it's the place to be for help and advice.

    I am a T3a N0 M0 Gleason 5 + 4 = 9, My original diagnosis from Urology was that the PC had escaped the gland but at a later stage the Oncologist said the scans were inconclusive but would treat it as if the PC had left and was in my nodes.

    I am now 18 months into my PC journey and feel great - I am awaiting a PSA test after radiotherapy and I am aware that I will be on lifelong checks - but - there is hope.

    You can read my full journey by clicking on the icon of the beach. 

    The initial diagnosis is very worrying but the treatments for PC are advancing daily and the Cancer is no longer as dangerous as it was 40 years ago.

    Your partner is already on the treatment path and his Gleason score is not too high so there should be a positive outcome.

    Keep us posted with your partner's progress and ask away if you want to know anything.

    Kind Regards - Brian.

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