New here and anxious

Hi again STS , have just come across this post after having replied to your first post.  You have a low(ish) PSA so that is generally good.  Personally, I think you will be fine and even IF it is PCa then very likely curable.  Either way, please come back and let us know.  David

Hello STS and welcome. Of course you are anxious as your world has been turned upside down with a possible diagnosis of prostate cancer. To help you understand what is going on I have attached a link to a book which you can download for free and I think the title says it all - a survival guide. 

https://issuu.com/magazineproduction/docs/js_prostate_cancer_guide_for_patients_ezine

The waiting for results and tests is the worst part but there is a good statistic that 98% of men die with it and not OF it. Your PSA is still low and over recent years there have been huge strides in treatments and how to deal with the different types of prostate cancer which means that men stay on a curative pathway. Please only use trusted sources of information on sites like PCUK, Macmillan and CRUK. What you have to remember is that information is often based on retrospective data when treatment protocols were not available. You are going to have questions and we will try and help you from our own experience so ask away. There is life after diagnosis and it can return to normal for many men. Don't be rushed into making any decisions and look at all the your options if you are diagnosed with prostate cancer which is normally slow growing.

 STS - see my comment on the other thread.  Your stats are in a good place for cure.  PSAD of 0.24 is fine (mine was 0.52).   AW

PIRADS 5 is actually a good thing. It means that they can target the lesions effectively.  AW

Hello and welcome. I am sure must of us have been where you are, that feeling of doom, anxiety and worrying and wondering. As soon as you get your treatment plan then hopefully you will start to feel better. The waiting is the worst. We are all here to support you, no matter how big or small it is. Never be afraid to ask us questions 

Update!! I have been called in to see the Urologist on the 2nd May. My head is now convincing me I definitely have cancer otherwise the would tell me over the phone if it was good news!

But don’t fret: if it was urgent they would probably call you in earlier.  Besides, your diagnosis pathway has been so quick so far.  You’re in a good position.  Keep the faith.  AW

Hi STS , the waiting is the worst bit.  As I said before, you will be fine.  Keep us posted. David

Well confirmed localised cancer. Shocked when told Gleason 9. Offered hormone and radiotherapy or prostectomy.After research I’m leaning towards prostectomy.

Good Morning STS 

I have been following this thread, but not posted so far, so welcome to the Gleason 9 club!! !!

STS said:

.After research I’m leaning towards prostectomy.

The treatment options are a personal choice and remember it affects both you and your partner. You say after research, I hope this has all been from trusted sources, Prostate Cancer UK, Cancer Research UK and Macmillan (not Dr Google). You need to list all the possible side effects as to how they would affect you and your partner before making the choice you need to speak to both your surgeon and oncologist.

Here are two links you may find helpful:

Prostate Cancer Surgery

Hormone / Radiotherapy

I do hope this helps. If you need any further help or information, do let me know.

Do keep us posted as to how you progress.

Best wishes - Brian.