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Hi Prostatewarrior,

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Hi,

I don't know much about malignant neoplasm, but I am sure some of the guys on here will know what that is. My husband has advanced prostate cancer which has metastasised to the bones and is being treated with hormone injections as cannot have chemo or radiotherapy. 

I noticed you hadn't had any response, so maybe you could tell everyone a bit more about what treatment they are offering or what you are having which should trigger a response from others. There are some wonderful men and women on this forum who post almost daily and they will be very supportive.

Best regards

Gina

After the initial surgery I was told that "Any further intervention will suppress your immune system and that's all you have to fight with". Since then I eat sensibly and exercise everyday and so far the periodic PSA test's haven't got any worse.The hospital put a DNR on me on the 15th May 2021 without either my consent or knowledge which I only found out about last month.

Where is secondary neoplasm located  PW. What is your psa now, r u on HT

DNR doesn't sound right at all.

Steve 

The MRI Scan on the 4th October 2020 before surgery on the 13th showed nodules in the lungs and a lesion on the pelvis,all of the post surgery tissue samples showed cancer cells present so they decided not to offer anymore treatment.On PSA levels I just get told that they are fine.No medications etc just get a 6 monthly phone call.Havn't seen the consultant since the operation in 2020.

I am really surprised. The whole point of the hormone treatment, usually by injections, is to reduce testosterone which prostate cancer needs to grow and also any secondary cancer cells. We were told that not only will this treatment slow the prostate cancer, but it will also stop the secondary bone cancer from growing too. On that basis, I don't understand why you have not been offered this treatment. Also, I was not aware that a DNR could be placed without your consent. Which hospital do you attend?

Normally if u have bone mets the PSA would be above normal. So if you're not on HT then what's happened to the cancer mets.

Good news though,  looks like everything alright and PSA low.

Best wishes

Steve 

Southmead Hospital in Bristol, originally I understood that after the radical prostatectomy I would go back onto the hormone treatment for 3 months prior to having radiotherapy but the lab results showed such a wide spread that I was told no further intervention.I have a personal trainer and so far with diet and a rigorous training regime have been able to hold it at bay.

My trainer and I believe that a sensible diet and rigorous training regime strengthens the immune system to fight with.

Sounds good and I go with that