Worried about my husband

Bless you so much xxx 

We finally had our diagnosis..not feeling much more optimistic, Gleason score of 9 spread to lymph nodes no visible signs in other areas like bones etc.  starting 4 weeks of oral medication asap with 3 monthly injections.. it’s very much a blurr, don’t even know the names of the medication yet, though I did record the visit, we need to listen back.  It’s still makes us feel,like we’re in limbo and his nausea and gassy stomach pains are still stopping him from eating very much, he’s lost so much weight.  He was given ramipril for high blood pressure before his diagnosis, it didn’t agree with him, his upset stomach seemed to start with that, so he stopped taking it, his blood pressure is actually much better now without it, that was almost 8 weeks ago, I don’t know if it’s possible that is still the cause…seems such a long time.  Anyway our journey begins here! Thank you everyone for your kindness.

Hi Raven 

Well at least u know now and it's not all bad news.

Best news is that it's not in the bones 

Good he's started on hormones , that should get PSA down and halt further growth.

Have they talked about further treatment ie Radiotherapy.

Regards

Steve 

Not yet Steve, waiting for apt to meet the team.  Hopefully medication starting in one or two days waiting for prescription.

He's probably taking Bicalutamide just now. That is to stop tumour flare when the hormone injections start. He should start the HT injections whilst still taking the Bicalutamide. He'll probably be having Prostap as that is the most common HT drug.

I was diagnosed as Gleason 9 in October 2018 and after three years of HT and 20 sessions of RT in early 2019 my PSA is currently at 0.2 so effectively in remission.

Good luck with the treatment.

Omg…thank you xxx you have no idea how this helps me to feel.  Thank you so much 

I was diagnosed last december with a high psa score of 33 and a gleason score of 9. I am on hormone injections and chemo tablets and i am currently waiting for my radiotherapy dates, it is a stressful and worrying time but the nhs have been wonderfu and macmillan nurse are a godsend. It is a long journey but it will all work out fine.