Feeling positive

Hi, Just picked your message up as I was switching off for the night.

First thing - you are not alone!¡!!  Second there are a bunch of great guys on this forum who will be getting back to you with support and advice.

Will speak again tomorrow.

SeaJay

Hi

Really sorry you have had such a bad experience with your CNS assigned to you. In Bournemouth, it is a team of CNS that support, rather than an individual. So, although I tend to speak to the same one on my scheduled calls, if I call them, I could get anyone call me back. If its a similar set up where you are, have you tried speaking with another one?

Regarding the HT side effects. In my experience, it felt that the effect of the  hormones, built up over a few months. So the hot flushes became more intense and regular - I was forever taking off a jumper then, 5 minutes later putting it back on again! The tiredness seems to follow a similar pattern. You won't feel like it, but if you can try and keep up whatever fitness regime you had before PC , it will help.

Onto RT now! The RT part really is a doddle. Use the enema, drink ( in my case ) 600mm water, lie down for 5 minutes - job done, until the following day of course! The only problem I had, was because I ignored the recommendations on the diet sheet they gave me. Hopefully, they will give you one, and I would highly recommend you follow it to the letter. I had a glass of wine and a few sprouts with Christmas Dinner which was a massive mistake!

Hope this helps

Regards

Stuart

Hi watsisname

Just replied to you on the other thread so I thought I would catch up here.

I agree 100% with Seajay & Scampidoodle - the support on here is amazing, I first joined during the "dark days" after my diagnosis but found out speaking to the good folk on here - it's not all doom and gloom - yes you are on a journey, but in my case and almost 100% of everyone else here they arrive at the right destination.

Ask what you want - rant and rave if you wish - someone will get back to you in support. Some of us have also created a journal of our personal journey and if you click on the icon of the beach you can see mine. And it ends well!

Best wishes  - Brian.

Hi Whatsisname

Here you can ask questions and get a good response, same if you want information. Some have been in your shoes, they feel isolated, not so, just join in any conversation, you might find people living not far from you.

liveing with PC is a mind bender, not only for you but for your wife as well. Stress is easily hidden but it’s there, being positive is very important gets you both through the day, good and bad.

Because of strikes etc, it’s not easy to get dates and appointments and treatments, they will happen, dealing with side effects is expected, if they get to bad your doctor can help with some, the specialist nurse or oncologist are others.

A good idea, if you’ve got one that’s not far away is to visit a Maggies centre their great at listening and giving advice.

Stay safe

Joe

Hi Again,  

As you can see by the response to your post, there are folk who will get back to you when you have concerns about your treatment and fears.  Could I suggest you post a bit more information about your diagnosis in your profile - PSA results, Gleason Score, Type of radiotherapy you are booked to have etc. which will help when they response.

All the Best,

SeaJay

Cheers Joe.. I had not heard of a maggie center..I just googled.. Oldham is my closest but 20 miles or so ... Good to know thank you

Cheers SeaJay I put a fait bit of info in.. I will put actual number in then.. :)