High PSA results

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Hello Everyone

I'm feeling very low after having 2 PSA levels of 32, and some other symptoms which suggest I have prostate cancer. Waiting for a MRI scan at the moment. Finding it difficult to cope with sudden impact on my daily life. Only my wife and I know at the moment so thought I'd join this forum to try and get a bit of reality and support from others who are going through the same thing.

  • Hi Brian,

    I didn't bleed at all after Radiotherapy I've always been slim very very active judo running etc etc 

    I had my Radiotherapy in 2020 and I only started to get bleeding in 2022 just little bits which didn't bother me but then the stomach aches started & after just having an endoscopy a few weeks ago the consultant & I saw on the monitor myself small lesions cuts on my large intestine walls he said it's all down to the Radiotherapy a known side effect.

    I was an IT manager until I had to give up work in 2019 after being diagnosed so facts & accuracy is my business I love yo to read & I understand things

    Cheers 

    Charles M

  • Hello Panda.

    Sorry to find you here but sending you all the best on your journey.

    I was found to have PC in 2020 (see my profile for details) and have 2 sessions of RT to go.. so far it is good news.

    Hopefully you will get good news too.

    Regards.

    Pete

  • WW

    Thank you for expressing all of that so well and giving such encouragement to those, like my husband, who are just starting out on this treatment journey.  The HT is going well - so far so good. I’m glad to hear that Radiotherapy is manageable with support from loved ones who only want therir partners to come through this as well as they can.

    Thank you once again for taken the time to encourage all of us.

    Robina

  • Awww! Thank you Robina. I absolutely agree - we all want the best care and the best outcome for our menfolk and I think we all try to get them through it as best as we can. I do hope all goes well for your husband and yourself.  xxx

  • The waiting is never easy - I’m a daughter and wife both my father and husband had high PSA levels but both with very different outcomes 

    my father had no symptons except a high PSA 

    my husband had all the symptons hence why he had blood test

    my fathers was pc but my husbands was only an extremely large prostrate had it all his life apparently but they continue to grow throughout life and it had started to restrict the piping etc  hence sympton and rising numbers - one turb op symptons gone and number down 

    it’s easier to say than do but PSA levels only suggest things the mri may confirm pc but not always x

  • Hello

    Many thanks for your reply. Sorry for the delay in replying but we have been away for a few days. I showed your reply to my wife and she said that was exactly how she feels and that was very reassuring for me. I'm determined not to to let PC define what we do, but to carry on as far as possible with our life as it was before the diagnosis. Trying to get as much information as possible on the best form of HT and we'll see it through together. A bit disconcerting as I'm not yet on a treatment plan, but taking some consolation from this forum that the PC tends to move very slowly. The urology consultant who did my biopsy reckons it probably started about 10 years ago, as the PSA score roughly doubles every 3 years. Hope to see the oncologist in the near future.

    Keep in touch

    Bob

  • Hello Pete

    Thanks for your post. You've had a very difficult few years. Well done on almost completing your RT. How did you get on with the HT?

    Regards

    Bob

  • Just had a face to face meeting with urology registrar . He's realised that I haven't had a recent CT scan (last one 2018for colon) so has ordered an urgent CT scan delaying the start of my HT. Another waiting game and concerned that the original conclusion that the cancer had not spread outside the prostate could be wrong.