husband recently diagnosed

Hi Woolly,

I am sure some of the other guys on this forum, who have had scans, will get back to you soon, so be warned to expect lots of replies!! They are all quick off the mark to lend some advice and support.

My husband's pc has spread to the bones.  He had three different types of scans when he was first diagnosed. As the cancer can metastasise all over the body, I think they are just looking thoroughly before giving you the final diagnosis, and this is probably routine. Waiting for the results is always going to be the worst time.

Keeping my fingers crossed for you that it was all clear.

Gina

Hi Woolly 

Ive had 3 bone scans over a six year period, all consisted of both a full body scan and a separate pelvic scan.

hope this helps

Best regards 

Hi Woolly

From memory, I think my bone scan took around 25 mins. Can't recall if they went up, and down, then had another look at the pelvis area.

Sounds like a normal scan to me, but I'm no expert.

Regards

Atuart

Hi Woolly, my husbands tumour was picked up by MRI following a raised PSA. Like your husband, there was nothing palpable by DRE. PSA 10, T3 a N0 M O. He then had a biopsy Gleason 4+3= 7 . This was followed by a bone scan. When they rang to give a scan appointment I asked about the procedure. It involves having a radioactive dye intravenously and then waiting 3 hours before the scan proper. She also told me the scan would take 30 minutes and the scan results immediately sent to a radiology consultant. If the consultant found any secondaries he would request more scans taking about 15 minutes. So, when my husband had to have another 15 m minutes more of scans you can imagine our panic! It turned out this lady had been very wrong to have said this to us and my husband had no bone secondaries.! The extra scans were requested for greater clarity! We did complain that we had been given the wrong information and that we had been caused unnecessary extra distress. I now realise that mri, biopsy, bone scan seems to be the diagnostic pathway to determine the treatment. What is so wrong is that you are not told this at the very beginning so you are prepared! 

As others have said, you have to ‘push’ to get along this pathway! I asked how soon the results would be in the hands of the urology department. The answer - it’s all computerised and they will be with them tomorrow. This was at 5 pm on the WednesdayI rang the hospital prostate cancer nurse specialists and asked for the results. We got the results on the Friday - no bone secondaries.

by the way - tears work wonders when you are trying to get info!!!!

I hope this helps and I hope you can be sufficiently politely assertive to get the results that I know you so very much need right now and not in 10 days time. I hope , too, the results are good for you,

finally, if you do decide to chase up, please remember that you can approach the hospital PALS ( patient advice and liaison service) to get through the bureaucracy for you.

Thank you! I realise that no one has all the answers on here and that every case is different, but it has definitely helped calm my anxiety slightly to hear that this is all quite usual! Thank you!

Thank you so much for your supportive and encouraging reply. It is much appreciated!

Thank you! 

Thank you very much for your kind reply. I wish you and your husband well.

I did warn you that you would be inundated with responses from the wonderful guys and gals on this the site that nobody wanted to join.x