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Sandoj,  Welcome to the club nobody asked to join.  We all have the same thing in common.  Wow, PSA is 266.  You will find many men here who have had similarly high PSA levels.  I don't know how they could say it has spread to your bones without a "Bone Scan".

I know when I was diagnosed in May 2021, my head was all over the place.  I was under the impression that it was just me.  How wrong I could be.  This is a great forum to find out other's experiences, and share your own.  It really does help!

The Hormone injections do make you feel different, mood swings, hot flushes just to name a few.  If it wasn't for these Hormone Injections though...

Keep us all posted on your journey.  Take Care!

Hi Sandoj. Welcome pal - well 266 shoves my original 182 down the rankings!! PC is an interesting issue as we are all "different". I was told on diagnosis it had spread to my bones from the original MRI scan but my scan was done in connection with a CT scan with a contrast dye. My latest view of the oncologist is it's still only in the prostrate so there's hope for you yet!

If you click on our icon (mine's Oludeniz beach) you can follow our own journey.

HT is another interesting one - I was great on this for 6 months - thought I had got away without any side effects and boom, I started with the hot flushes and the old bobs grew.

Agree with Steve - keep us posted and any questions just ask - someone here will know the answer.

Best wishes on your journey.

Kind regards - Brian.

Thank you for the welcome. The MRI scan did include a CT scan with a radioactive injection, hence the bone invasion with multiple sites.

I must admit it does seem a lonely place to be, not quite sure what's happening within and an unsure future.

Thanks again

John

Thank you, Steve, The MRI scan did include a CT scan with a radioactive injection, hence the bone invasion with multiple sites.

I'm still in a daze with it all.

Regards

John

Hi Sanjo,

My partner also has a high PSA, what with doubling times I think he would have been just a few months behind you. If you click on the blue ribbon icon next to my name you can read his profile and see his treatment, you may find it helpful. If you have the spare money its always worth going for a second opinion on scans and treatment options, we went to the Royal Marsden, it's just under £500 for a consultant for an hour, we had a more detailed conversation that we found very informative and helpful. It sounds like your GP and consultant are excellent though, especially with speed you have been seen and the Ht starting.

My partner seems to be taking things reasonably well, he's now had a couple of months to get used to the idea and is taking a positive approach to treatment. Obviously like you it was a terrible shock at the start and very frightening, but researching information has helped him adjust to where he is. I would say for the first two to three weeks he was in denial and literally every time we went to an appointment he would come out saying "Well that's a lot worse than I thought it was," I guess there is an adjustment period for everyone. I think its a great Idea that you have found this page, any questions or worries that you have ask because you will always find someone that has gone through that experience or treatment. I find it a comfort to know that there are people that understand where you are and how you are feeling. I dread having to tell people outside of this environment as its so exhausting explaining and then dealing with being in that same space as someone that feels that they have to react or say the right thing, when they can't really connect with where you are at. Stay positive, you've had an excellent response from your GP and Consultant, there's a lot of different treatments available to you. Eat well so your body has everything it needs to put up a good fight and replenish it's T-cells. Take a few extra supplements. Calcium for your bones and vitamin D, Vitamin C for your immune system (2000mg a day) and you may as well add a multi vitamin while you are there. Introduce exercise into your week, if you are not doing already. 3-4 times and at least one-two sessions should be weights to strengthen your bones.Taking charge will help you stay positive and fit.

Wishing you all the best, keep us posted

L

Hi Sandoj 

Your diagnosis is simular to mine,  PSA 350 spread to groin and lymph nodes as well to some bones so told it was incurable. Didn't have a bone scan just biopsy and ct scan. It hit me hard didn't want to live anymore. But given the hormone injections which brought psa down to 3.5 then onto enzalutamide tablets which brought psa down to 0.007 undetectable. I have been on these for 18 months and still undetectable, yes the treatment is harsh with bone pain and fatigue and hot flushes but prescribed alendronic acid and accrete tablets to strengthen bones and cyproterone acetate for the hot flushes which have worked a treat. I know everyone is different and their bodies react different to the treatment just try to be positive and don't be afraid to ask questions, I'm lucky to have a wonderful wife who has been my rock. I hope your treatment go's well and start to enjoy life. 

 HotflushIva  Please be aware that long term use of Cyproterone can cause your HbA1c level to rise and push you into Type 2 Diabetes. Many medical professionals are unaware of this even though it's in the PIL. Make sure that your GP monitors your blood sugar levels.

Yeah Seamus47 

I was prescribed them in Sept but didn't take any of them because I heard that they can give you high blood pressure. After seeing the oncologist in November she explained that my blood levels were normal and that the dose I was taking was very small 50mg.I get blood tests every month so any problems I'll stop them. I'd must admit they are working, hardly any flushes. 

Thank you for the encouragement.

I'm having my second injection at the end of the month and seeing the consultant in early February, hoping to see some downward movement in the PSA,