First appointment after prostatectomy

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My husband’s first appointment after his prostatectomy is this Wednesday and I’m really starting to panic, I am staying strong in front of him as he’s done so well and I have been positive up to now but as time ticks on, I’m becoming more anxious. 
My husband had 2 tumours, one Gleason 6 and one Gleason 3+4 so I know that’s favourable, he also had PSA OF 10 which crept up from 6 in a year. 
The surgeon said he thought the cancer seemed to be confined to the prostate on removal but without the pathology you just don’t know.
Can anyone tell me the news they received at this first appointment and what was done next?

Thanks so much and good luck to you all 

Clare  

  • Hi Clare 

    I see you've had no reply yet, I had RT not surgery

    My guess is that hopefully they will tell u that cancer was contained, looking at the low figures that would make sense

    I think after that it would just be down to PSA tests to make sure doesn't start rising.

    Now prostate removed PSA needs to be near zero and stay that way.

    Good luck for Wednesday

    Steve 

  • Thank you for the reply Steve, I’m praying that is the news we receive, just wondered what had happened when this wasn’t quite the case. 

    Has your radiotherapy treatment been a success? 

  • Come back here if any different, hope all goes well.

    RT in 2017, all ok but the only problem is , wondering if it's going to return, having said that, only tend to think about it for yearly PSA test 

    Steve 

  • That is good news, I suppose anxiety is all a part of this and something that will always be there. I wish you continued good health. Thank you again for replying 

  • Hi Clare. 

    At the meeting your husband should be told the result of his PSA, and there should also be an update on the pathology - whether the Gleason was accurate and, as far as can be established, whether the cancer was confined.

    I recall being very anxious in the days before my consultation, far more than I was in the run up to surgery. Fortunately for me, the news was positive.

    I will keep everything crossed that the news is good. If not, don’t panic, as a treatment plan can be agreed. If the news is positive, expect the surgeon to still be very realistic. Mine was very candid - the positive outcome did not alter the fact that I will still need periodic PSA screening, and I am very aware that urologists are reluctant to use the word “cured” until those results have been undetectable for several years.

    The best of luck to you both.

    HH

  • Thank you so much HH, that is great news, you must have been so relieved, I understand whatever is said is only the current situation and my husband can have further treatment if necessary and future monitoring, I find I’m dealing with this in stages, always being anxious as we approach the next hurdle, something that’s part of life for all of us now and that is a good thing. 

    I hope we get similar news to you and I hope you continue to get positive results,

    Thank you again HH Blush

  • I absolutely understand your anxiety. It is something I still feel now before my periodic PSA results and I’m not sure I’ll ever feel entirely comfortable. But I try and balance that with my unshakable belief that, should I have a biochemical recurrence, our wonderful NHS will deal with it. I will not hear a bad word said about them as the care I have received has been magnificent.

    Your husband’s numbers sound very much as though his cancer has been caught early, as they are similar to mine, and as such has been treatable. 

    Wishing you the very best, and I’m happy to answer any questions if you feel sharing my experience might help.

    HH

  • Hi, HH,

    Replying out of curiosity. Why Hacker? Are you into computers or is it your name?  I ask because this is my surname!!

  • Hi Sidsmum

    It's very strange this site - my name's Brian Mxxxxxxxxx and there's now a contributor with a user name of BrianM and it's not me!

    Small world?Grin

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