Hi to everyone. Firstly I do not normally do forums or online chatting but reading through some of the posts and some of the stories I admire peoples strength and bravery. Some make me feel that I have it quite easy.
I'm 48 and was diagnosed with prostate cancer in January 2021 with a psa of 2976. I also had cancer in two places in my spine and was told another month and i probabably would have lost the use of my legs as my spinal cord was being pressed upon on mr MRI.
I had strong radiotherapy straight away and went on to steroids, enzalutimide and degrelix. 23months later my psa is stable around 6. I have the normal back pain,fatigue that comes with the treatment and the degrelix hits mee quite hard every month.
I'm a typical bloke and just get on with it I still work in construction industry.
My question and experience is since I was diagnosed I thought my family of 3 young daughters and wife of 18years would become closer but in fact it has driven us further apart. I get no support. I'm never asked how I am, how I'm feeling. I've always supported my family but this has really damaged my family. My wife really does dismiss it and even negatively comments about it. Has anyone else experienced this as I have no idea what I've done I never wanted this and would wish it on no one.
I haven't had a break for two years but I needed a break this summer. My two daughters and grandchildren and I usually to away for a week to Norfolk. I didn't want to miss another year so I found a carer who my daughter knew and who used to care for my mother. She just visited in the morning to check on him for an hour, so I would urge you to do the same if you can't leave him.
You have to take care of yourself as everyone keeps telling me. I had a wonderful day at Ragdale with my sister today. After booking, I had my fingers crossed for weeks in the hope he would be well enough for me to go and thankfully he was.
First rule of caring, look after yourself. Hell's teeth, who am I to talk, I never normally do?
. Friends do keep telling me, so occasionally I listen.
Gina
Keep up Ulls, my trip was in August, back now and wondering when I will ever get away again!!!
