Undecided on treatment

Hi, Almost in the same boat. Offered surgery or hormone/radiotherapy as recommended options. Didn’t fancy the side effects of surgery at all, so opting for hormone approach. Spoke to MacMillan nurse today about 2 other radiotherapy approaches, HIFU and Cyber Knife. Do you know anything about these?

Hi Paul I’m afraid i haven’t looked in to hifu and cyber knife so no nothing about them. Will query them at my appointment next week. 

Mainstream treatments are normally surgery or Radiotherapy.

Cryo and Hi Fu have become additional treatments over the past few years particularly hi Fu.

Hi Fu now available in some NHS centres so it's def worth asking.

Still think not too many figures on long term success rates re Hi Fu but probably worth researching.

Hi Fu supposed to have less side effects but I had the latest Radiotherapy 5 years ago and didn't give me any major issues.

Hi Fu works best if cancer is contained within the gland 

All the best 

Steve 

Hi I was offered surgery or hormone/radical radiotherapy after talking to both consultants I chose hormone/radiotherapy. Following one hormone injection with very little side effects just tiredness 3 months later I had 20 sessions of radiotherapy. Again I had very few side effects from the treatment excellent support from the MacMillan nurses. Second follow up consultation in a couple of weeks. My Gleason score was 4+3 and PSA was 16.2 at the start of the treatment 3 months later the PSA reading was  2.6 I have just had another blood test for my 2nd consultation follow up in a couple of weeks. Wishing you all the best.

Thanks for that I think I may go down the same route. 

hi woodski I had surgery 12yrs ago my Gleason was a 9 and at the time of opp 11.1 PSA. I had the opp if I had to touse again probably no surgery it has come back 5 times now but I am still in a mind to beat this. pills come with their own problems female hormones well there are 2 side effects sorry to be blunt but you do get a nice pair, the 2nd is diabetes, which will be about 1 year or 2 before diabetes kicks in. with surgery there is a chance of bladder control not as good but worst case you can get devices that will help or an AMS 800 which I have and the one thing they don't say is you lose 3ins of your length this because the urethra has to be rejoined 

On the plus side, I am 69 and still work 4 days a week has this slowed me down not a chance lol. 

Thanks everyone for info, apologies for late reply, overrun with grandchildren. Have a meeting with oncologist on 30/11, let you know how I get on. Paul 

Thanks Graham for your candid views I think I’m going to go down the ht route hopefully will be able to have brachytherapy as I only have localised pc which was caught early. Glad to hear it’s not slowing you down. Keep on fighting. 

My Bio is up to date.  I had HiFU treatment 3 weeks ago. My London NHS didn't seem to offer it, maybe because NHS biopsy returned 12/18 cores with  Gleason 3+3. Used private health through work to investigate HiFU, a multiparametric scan, a fusion targeted biopsy, HiFU treatment to target two lesions on the prostate.  There is no right or wrong choice, it is what is best for you.  Good luck 

I was diagnosed with prostate cancer in 2014. I elected for Hi fu and then had a second hifu in 2015. 

My psa started to go up dramatically in early 2020. I was offered surgery or radiation therapy and hormone treatment. I elected for radiation followed by zoladex for 2 years. The side effects of hi fu are barely notcable and those from radiation short term.

However zoladex is more serious hot sweats ,male menopause etc. I have another year of quarterly injections and hopefully all will be well. My psa at present is undetectable.

I was unconvinced by surgery and during my radiation therapy many of the other patients had had surgery privately but clearly yhey still had problems