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Hi Penny22

I was diagnosed stage 4 PCa to bone metastasis. I have been fortunate with treatment as the cancer has not progressed and I have never felt and pain in the area that were detected. However I do have issues with sore feet which oncology suggest it's related to bone spread in my pelvic area. I have had my feet xrayed twice and awaiting to be informed if anything can be found.

I couldn't get my head round it either at the early stages with having bone metastasis and having no pain but have learned to accept that it is there. As I mention treatment has maintained my quality of life and I was diagnosed Jan 2020. I just have to accept the situation and get on with it otherwise I'd probably cry about it a lot

All I could suggest is to trust in your care team as they have helped me a lot in dealing with this. It's not going away so it's just got to be onwards and upwards!

Dunno if this help you and your partners situation but I hope it does give some reassurance in some shape or size. 

Hi Penny22, welcome to the site nobody wants to be on, but welcome anyway, have you read my profile as I suggested, your husband's PSA is similar to mine, Gleason 5+4=9, I have never experienced stomic pain, occasional bone pain, hot flushes, and tiredness, but they are manageable, don't take any pain relief,

I know this is hard for your husband, but it's worse for you, you ladies are our strength helping us get through this crap, whenever you're husband goes to a meeting go with him two heads better than one.

Penny,

Definitely agree with Ulls about you being there with your husband for any appointments, mine took everything in, while I wasn't always there (if you know what I mean).

Best of luck.

Hello Penny

Welcome to the forum, your husband has gout, me to for over twenty years, nasty thing when it attacks. Like a lot of us me included, we have it in our bones. According to how they treat him, the medication will attack the PC and also treat what he has in his bones, having said that it might not destroy all of it. 
I have it in my pelvis and ribs and maybe my shoulders, it was in my spine which caused a bit of damage, but on scans now, does not appear to be there. 
PC is very slow to grow, I had terrible scores, very high, but over six years on I’m still battling away. I understand how your feeling, my wife is still a bundle of nerves, sometimes cries a lot when I don’t see, but her voice gives it away.

Whatever the team decide once all scans are done, will be in your husbands best interest, his welfare is their top priority, their excellent at their jobs, listen to what they say, ask questions, make sure you both understand. If there’s a Maggies centre near you, pay them a visit, their good people and will have plenty of advice and a cup of tea and a biscuit.

stay safe

Joe

Joe, Penny,

Where I live there is a good monthly Prostate Cancer Support Group at Maggie's in Newcastle, I said yesterday that I would try to promote them.  I think all Maggie's should have something similar.

Hi Steve

i live fairly near to Withington, which has a new Maggies centre there, as you may know is one of the leading cancer clinics in the country, but thanks for the info.

stay safe

joe

It certainly does give reassurance. You suddenly don’t feel so much alone. I seem to eat sleep and breath this situation. But knowing your not alone does help. Thank you so much 

Wow.. just read your profile. You’ve been through the mill, but what an out come. You are extremely positive and guess that’s what keeps you going. Thank you for sharing your journey. As my husband is newly diagnosed, we are still in the dark about we’re we go from here. Again thank you for sharing. It does make a difference knowing you have people around who actually know what your going through and help you come to terms with your diagnosis. Please keep us updated on your progress 

I think your maggies is the same one that we will use. I have heard about it as my daughter worked at the same hospital, she has advised us to go. We will be visiting it on Friday. Thank you for your advice 

Penny, you can sit for ages reading through profiles, this is possibly one of the best things about this forum.

Beforehand you think you are the only person going through this, but it is amazing to read other's stories.

Can give you the boost your need.