Side Effects - Joint Pain

Hi Jalo,

 I have just read your post.

You could be experiencing late effects of radiotherapy, which does include joint pain, amongst other things.

Maybe have a chat with either your GP and/or specialist nurse and ask about the late effects?

Love and good vibes,

Lisa xxx

THANKS

Hi Jalo,

You are welcome.

Lisa xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Diagnosed March 21 with G/S 7(3+4) prescribed HT and RT (20 fractions) finished Dec21, HT till April next year, I too am experiencing joint pains in my hips and knees, I haven’t mentioned this to my CSN yet as I probably don’t want to hear his answer. At the moment it’s not so much as pain, but a lot of discomfort, I have not tried anything to ease the discomfort yet but like you I would like to try something without bothering the professionals first.

So sorry to hear about your aches too. I haven’t found any solution yet and I’m assuming it just has to be lived with until the hormone treatment ends. I do find that exercise/keeping going helps. I think mine is worse at night because I’m not moving about as much. Good luck!

Hi Jalo Am 72 I had my prostate removed August 2020 at the time it was thought the cancer was contained in the prostate but due to covid my operation was cancelled for 10 months after the operation they found microscopic cell in my seminal vesicles PSA  was 0.1 after operation and rose to 0.4 in 5 months consultant not happy with rise as it should be undetectable after prostate removal had 20 days of radiotherapy and now on 2 years prostap injections I also sweats, sleep badly, , fatigue , and emotional been known to burst into tears at sad stories and news I use to walk 5-7 miles been doing that for the last 11 years every morning but started having pain in my lower back and hip doctor sent me for a x-ray was told i had severe arthritis on my right hip and mild on my left and a lack of muscle in my thighs asked him if the lack of muscle not due to the prostap injections he said nothing to do with that??????? now on Naproxen and co-codamol its easing the pain

Thanks for your reply. I’m so sorry that the prostate removal wasn’t totally successful. So many of your side-effect  symptoms are just like mine. I’m glad that you are getting some pain relief with the cocodomol.

Hi Jalo,

Like you I’m also on Prostap and suffering from joint pain mine is in my knee. After contacting my GP he sent me for an X-ray. 
Yesterday I saw a Physiotherapist at the practice, after reviewing the results she said that although the X-ray looked good there’s slight cartilage damage by nothing to be concerned about. She did recommend daily exercise and loose some weight, I explained to her that since being on Prostap I’ve put on weight, she then said speak to my oncologist about it. Having already done this I feel that things are not going to change.

She did recommend getting a knee support for when I do my daily exercises and go for long walks but not to wear it all the time or at night in bed 

I’m on Prostap for another 2 years and having finished 37 sessions of radiotherapy just over a week ago I shall keep a record of my progress.

Tyler

Hi Tyler,

Thanks for your reply.

Sorry to hear about your knee, but it is reassuring to hear that other people are experiencing similar issues to my own. Certainly for me, exercising the painful areas does help. Early morning, when I start moving, the pain in my wrists and shoulders is at its worst. Once I get moving the pain eases.

Good luck with the rest of your treatment!

John

Hi jalo, I was diagnosed January 21 Gleason 5+4 with incurable advanced matast prostate cancer, I experience all the problems which have been mentioned by everyone else, had to spend Thursday in bed fatigue and pain, Friday spent all day just sitting on the terrace wife and daughter looking after me, woke up this morning at 6.30, got dressed went walking through the nearby Forrest, so all good, I don't mind any of the side effects so long as they can keep me going, life is good.

All the best Ulls