Gleason 3+3

Hi Ian 

Suppose I was similar when diagnosed in 2013,  went on AS for 4 years.

Worked out ok, just make sure you have regular PSA Tests and yearly MRI to monitor effectively.

Also worth checking on tumour size in mm and ensuring that it's not near capsule edge, although I'm sure they must have checked that .

I ended up having RT , that went ok , fingers crossed continues like that.

Good luck 

Steve

Thanks Steve

Really grateful. I’m still learning, all advice and information welcome. Glad that things are going ok for you. Top man.

Hi Ian

At age 54 my stats were very similar to yours. I am now approaching 60 and still on AS. I have had quarterly PSA tests and annual MRI but no more biopsies since the original one at age 54. I do my best to keep fit, cycling, jogging, gym and I don't eat much meat or dairy. 

Best wishes

David

Hi Ian,

My main lifestyle change was mentally.  I've never been one for exercising.  I did ask about a diet sheet at the hospital and was told that I didn't need one, just to cut out any caffeine, especially when I had the Radiation treatment.

I know everyone is different .  As. Grundo said, make sure you get regular PSA Tests.

I had Hormones and Radiotherapy last October and now I'm in Remission, just need to keep my PSA levels between 0 and 2 (tests every 6 months).

The only thing I can say is try not to worry about it if your PSA levels are low.  That is my aim now.

Thanks David

Thanks Steve

Why do you say the MRI doesn't align with the biopsy? Did you get the detailed biopsy results, with information about the cores, I asked for a printout of mine. In my opinion it is worth getting a second opinion as it does depend on the experts interpreting the results, including biopsy and scans. Saying that, nhs have been spot on with advice when compared to private so can't fault them.

Similar to me, I'm 51, diagnosed a few months ago, psa 5.something, MRI pirad of 3, 12 out of 18 cores with cancer, no symptoms.

Radical prostatectomy and ldr branchytherapy seem to be my options on NHS, apparently no rush to decide but likely this year or next year will need intervention so I won't be long on active surveillance.

I've been looking at focal therapy (hifu) privately because doesn't currently seem to be an option at my nhs but apparently there is no focal area for me which would likely mean full gland focal treatment which is possible but not sure yet if I want to do that.

Last week had a private gene test for faulty brca2 gene, nhs wouldn't do this as didn't quite meet their family history thresholds but I do have strong family history of prostate cancer(younger brother and dad). Waiting on results, if faulty gene present that rules out focal therapy and might need to make a treatment  decision quicker.

Currently I'm leaning more towards prostate removal but over the last few months my mind has changed many times depending which consultant I talk to.

Re lifestyle, interesting question, think I'm still in denial as I don't have any symptoms. Reasonable fit but thought I would improve diet but that hasn't really happened, have reduced alcohol but not food!

On diagnosis I searched prostate on Spotify and listened to some podcasts which alerted me to focal therapies, which have also been is press recently as more nhs look to offer it. I also found prost8 website useful.

Apologies, I rambled on a bit there.

Thanks for replying, really useful. I was overseas and took a phone call re:biopsy results, hence the lack of detail. I’m back in the country now, the MDT have met and I’m pushing for a face to face.

I will explore focal treatments and prostat8 website.

Thanks again 123. People have been so helpful.