There are miricles

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Diagnosed with advanced prostate cancer after my m.r.i.scan in early March..I was alone, scared and so very uncertain of my future...I was put on hormone tablets immediately and was told I needed hormone injections probably followed by radiotherapy..

After biopsy and bone scans , and after my first injection I was called by a lady from the hospital who informed me I had been misdiagnosed and only had prostatitis and to stop taking my tablets and cancel any further injection appointments....

How do I  feel ???!!!! 

WOW.. Still can't express my emotions..

Good luck everyone..Stay safe 

Steve

  • Hi Fishyface,

    Don't know if I would have laughed or cried.  The worrying thing is how could such a mistake be made?

    My emotions would still be bouncing around now.

    Still, I'm over the moon for you.

    Steve (SteveCam)

  • Whoop! Whoop!! Fishy Face…

    but Get all that in Writing and get a second opinion. One of these scenarios is true but which one?

    God I hope you are in the clear and please don’t think I’m trying to put a damper on things but get some clarification. This is the NhS we are talking about. 
    Ask to see your MRI scan to start with.

    sending you lots of congratulations too though!!

    louli

  • Louli, if that had happened to your husband would you be happy or angry?

    I still can't believe it.

    I remember last year when I was diagnosed, people were looking for Noah to build an Arc, there were that many tears.

    As you said, ask for it in writing and get a second opinion.

    Steve (SteveCam)

  • I can only agree with Steve, “awash with relief” might adequately describe your feelings. Followed by “how could this happen?” Congratulations, will you continue as a member-emeritus of this group?

    Richard the Shellback

    Richard the Shellback

    The situation is desperate - but not serious.

  • Hi fishface, thats unbelievable,but at least they realised the miss diagnosis quickly, so end news is fabulous.

    All the best Ulls

  • Hi Stevecam,

    My response is not in the least bit angry but very happy actually. Hence the Whoop! Whoop!

    In answer to your question it DID happen to my husband. We had years of endless GP visits with no answers and then only when I called a 999 was he admitted to hospital in so much pain he couldn’t walk. In for 4 days, multiple scans and X-rays and on oxygen. Sent home with no diagnosis and I couldn’t get access to the consultant due to Covid. 

    6 weeks later I took him back to the GP because he was still ill. Brand new young GP. First test she fid was a PSA. Sadly diagnosed stage 4 advanced metastatic prostate cancer with lung and bone mets.
    So my point is that I was told in hospital by a nurse all scans clear but no reason for why he needed oxygen or why he was in pain. The diagnosis was reversed 6 weeks later unfortunately.

    So as a nurse for 15 years myself I would definitely not take a reversed cancer diagnosis from someone over the phone. I would be delighted but I would want to see scans and reports in a face to face scenario for my own satisfaction. I would also want to know what information they were acting on that led to such a brutal diagnosis in the first place. 

    Sadly misdiagnosis has happened to me twice in the past year also resulting in the death of my 58year old best friend. I went with her to several scans and hospital appointments with lymph swellings the size of an egg under her arm. No no they said all the bloods are fine and biopsies inconclusive. I turned up at her door a week after she was told that to find her jaundice and took her straight to hospital where she died a week later with cancer of the gall bladder. 

    Thats my reality. 

    Kind regards,

    Louli

  • Hi Louli,

    It is frightening that things like this actually happen, seems to be more and more.

    Sorry about the Whoops, I must have misunderstood them.

    Hope things are going well for you and Mr Louli.

    Take Care.

    Steve (SteveCam)

  • Louli,

    I have a question for you.  Does your husband get up at "3-4am" in the mornings"?

    I don't know if it's the Cancer or what but ever since I was diagnosed 3-4am I seem to wake up & get up.

    I'm up at 4:30am for work anyway, but at weekends or whenever I am not working, it's always basically in the middle of the night.

    Is this a common phenomena? (good job I have autotext or I couldn't have spelled phenomena).

    Steve (SteveCam)