Cancer in pelvic tissue

FormerMember
FormerMember
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Husband had PC 10 years ago, raised PSA in last 3 years, now diagnosed with a nodule in pelvis.  Red flag not picked up by GP because PSA was in normal range but for those who’ve had PC a PSA above 2 is a potential red flag.  Feeling angry and despairing

  • 'Normal range' doesn't apply after treatment; the GP should know that.

    - - -

    Heinous

    If I can't beat this, I'm going for the draw.

    Meanwhile, my priority is to live while I have the option.

  • FormerMember
    FormerMember in reply to Heinous

    I’m not sure what we should have expected, I was giving the GP the benefit of the doubt but I think I need to investigate further what their protocols are in such circumstances. Thanks for the reply 

  • Hi 

    You don't say what treatment your husband had or give any other PSA figures so difficult to comment.

    It's always best to monitor the PSA results yourself,  I have noticed that GPs don't seem that concerned if it's below normal but if treatment has happened then a reading of 2 can mean something but also depends on previous readings.

    Steve

  • FormerMember
    FormerMember in reply to Grundo

    We did monitor the results every time.  It was below one for seven years then went to 1.1, then 2.4 then 4,6.  All still below 5.  First 2 years it went up we were assured by GP that it was ok.  Third year I trawled the internet and stumbled on something that suggested doubling of PSA was a concern.  That’s when I raised it with practice and after speaking to 2 doctors they agreed an urgent referral was needed.  That was in December and he finally got results this week.  We are quite tech savvy and have access to our online records but many people are not as informed.  And we were definitely ignorant of the fact that above 2 is cause for concern.  It’s worrying that perhaps many other men may be at risk because of the lack of adequate procedures  when checking PSA results in GP practices and I am going to look into it further.  I appreciate your comments, thanks

  • FormerMember
    FormerMember in reply to Grundo

    when first diagnosed he had 7 weeks radiotherapy and with very few side effects so he was very lucky

  • Yes, I think that at 2.4 something should have been done, ie referral to specialist. There are still treatments that he can have so all is not lost

    best wishes

    Steve