Hi everyone, newbie here.

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Newly diagnosed with prostate cancer diagnosis of T4, N1, M1b, with a presenting PSA of
45.7 and Gleason 5+5=10 on histology (with neuroendocrine differentiation).

For the record, I'm not a medical geek,  I simply lifted the above from one of my med reports. Grin

Having been diagnosed, a couple of weeks ago I was admitted to hospital with failing renal function (I already had a catheter in because of urine retention) and it seemed my kidneys had decided to come out in sympathy. The hours spent in the Acute Emergency Unit before transfer to a specialist unit at another hospital were a little surreal, as I was laughing and joking with the staff, with no idea just how serious things actually were.

Anyway, they managed to sort me out with a nephrostomy, and things seem to be working once again.

Putting feelings into words isn't easy for me, I live alone since my wife passed away and have no other family, but I am trying to be the same me, if that makes any sense. I cannot find it in myself to feel self-pity, but if I said I wasn't apprehensive about the future, I'd be lying.

So far, I've had a double injection of degarelix, with more to come on a monthly basis, and an upcoming appointment with a clinical oncologist to explore other options.

My new journey has begun.

  • Hi

    Sorry your going through all this, not a high PSA but high Gleason simuler to me, depending on your health is how they will proceed with your treatment. 
    Being alone is hard, although I’m nowhere near what I was, my wife looks after, your right about the journey, mines lasted five and a half years so you have a long way to go, sure you’ll get there.

    Stay safe

    Joe

  • Hi Joe.

    Many thanks for responding - my friends call me "Mad"....... Grin

    I actually thought my PSA level was high until I discovered this forum....there's always lessons to be learned from others.

    Take care and stay safe.

    MP

  • Hi 
    Ive seen people on here with a PSA in the thousands, mine was 893 so it’s treatable not curable. As regards the mad bit I’m slightly the opposite so easy going I’m amazed I can walk if you get my meaning.

    stay safe

    Joe

  • Hi Joe.

    I do indeed get your meaning. The "Mad" prefix goes back to my sea-going days when I was an onboard music director for a certain UK cruise line. It alludes to antics, not temperament.

    Take care and stay safe.
    MP

  • Hi

    If you ask my wife and daughters, I’m the biggest kid you could meet, always up for a laugh, one of my sisters gets me the other great girl I have to explain a little more.

    stay safe

    Joe