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FormerMember
FormerMember
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Hi everyone

My husband was diagnosed with prostate cancer on 16th December. Gleason 7 (3+4), T2CN0. MDT met on 31st December and have offered radical prostectomy or hormone + radiotherapy, apparently active surveillance not offered as some of the cancer is too fast growing. We have an appointment with the Consultant surgeon on 5th January where we are expected to make a choice on which treatment to take, my husband is just turned 51 and I turn 51 in March, we have 3 grown boys - none live at home. 

To say we are scared and totally overwhelmed is an understatement. My husbands work has been fantastic as have mine to date but I really don’t know how I’m going to cope with a FT job plus caring for my husband during and after treatment. I know this sounds so selfish and I feel terrible even thinking these thoughts but we have always been a team, facing all issues and challenges side by side, never apart and are devoted to each other … but I can’t escape the feeling that we are now being forced into taking separate journey’s which neither of us feel equipped to take. I feel that this bloody disease is already robbing me of my relationship and scared of what my amazing husband is going to have to endure both physically and emotionally ... I just feel so sad for us! 

We have been referred for counselling but no date yet. 

Thanks for listening/reading - any advice very much welcome. 

  • First things first, take a deep breath. Now read the information on here and I would recommend getting the information booklets from prostateuk they explain a lot of what you need to know. Looking at the diagnosis you have presented your husbands cancer is curable, it may be unpleasant at times but you will both get through this.

    As for work and care if your husband is anything like me he will not need care just knowing you are there for him will be enough, try as much as you can to keep your routines normal and trust the medics to do the right thing. The treatments offered now are so much better than in the past and are improving all the time.

    My story is in my profile and at the moment I am halfway through my radiotherapy sessions.

    All the best

    Keith 

  • First, be clear, Many men live 15, 20 years, more with prostate cancer, and from what you've said, there's no reason to think your husband won't be just fine after his treatment.

    It's also well worth reading the 'toolkit' for general advice.

    - - -

    Heinous

    If I can't beat this, I'm going for the draw.

    Meanwhile, my priority is to live while I have the option.

  • Hi

    Unfortunate about these circumstances, any news like this hits you hard, especially at your youthful ages, as Keith has said two things first the cancer is very curable, second there are many people on here who have had the treatments of both you mentioned and barely missed a day at work.

    There is always plenty of advice out there, McMillan nurses for one, you can ring them and they can come for a chat, their very helpful, if there’s a Maggies centre near you their excellent as well just walk in don’t be frightened.

    This disease was caught in plenty of time, which ever option you choose will happen and in no time your lives will be back on track.

    You are not alone in thinking what if and why us, it’s the shock of how you see the future turning out, in your husbands case, there may be a small hiccup it is cancer, but nothing he cannot get through, you just both need to stay positive, your both young once this is out of the way, you both can enjoy the new year.

    Stay safe

    Joe 

  • I wonder why they r saying that part of the cancer is fast growing.

    Gleeson 3+4 doesn't necessarily indicate that. You don't give  any PSA figures.

    Could be worth getting hold of MRI report to look at tumour size and location within prostate.

    Radiotherapy is not an issue as far as treatment goes but hormone therapy can produce side effects but not always

    Steve

  • FormerMember
    FormerMember in reply to KeithA

    Thank you Keith. We have a mountain of information already but I’ve ordered a few booklets off here regarding supporting someone with cancer.  Information overload has been a challenge but it 100% helps chatting to someone who knows what we are going through.

    Thanks for the advice about keeping routines normal, that sounds like a good way forward. 

    Best of luck with your treatment and thank you for taking the time to respond.

    Best wishes, Stella.

  • FormerMember
    FormerMember in reply to Heinous

    Thank you Heinous. 

  • FormerMember
    FormerMember in reply to joeven

    Thank you Joe - I will look into the Maggie Centre

  • FormerMember
    FormerMember in reply to Grundo

    Hi Grundo

    We asked why Active Surveilance wasn’t being offered and they said that because some of the cancer was fast growing that they could only see AS being an option for 6 months only then we would be looking at other treatment options anyway.  My husbands PSA wasn’t high, just 3.98 at point of diagnosis, 25 biopsies taken, 13 cancerous. 

    Thank you for advice of asking for MRI report, I think that may help. 

    I do have concerns regarding side effects of hormone, I’ve read it could make him anxious, angry etc which is the polar opposite of my husband! 

    As with everyone, thank you for taking the time to respond, I really appreciate it. 

    Best wishes, Stella. 

  • I would also reccomend visiting your local Maggie's centre. Mine is a 40 mile drive away in Newcastle but well worth it. Staff were lovely and welcoming, chat with them if you wish and they offer relevant advice and groups to join if you wish. I met some suffering from different cancers to ours and got an insight in how they and their families  were coping. Just call in, no need to book, and loved ones welcome too. They also offer lovely food and it's free. Hope all goes well for your husband, best wishes, Graham. 

  • Hi Stella

    Guessing you don't know what hormone therapy they are considering but Prostap ( for Me) isn't too bad. It certainly didn't turn me into Mr Angry - quite the reverse. It does affect me emotionally but, I feel that, as it blocks the production of testosterone, anger isn't one emotion it raises.

    On a personal level, despite originally just wanting this ' bloody thing out of me' , I'm glad I was only offered the hormone route. Anymore options would have made things far too complicated at a time when I couldn't think straight.

    Hope this helps.

    Regards

    Stuart

    Trying to get fit again!