New prostate cancer diagnosis

Such a shame it is like this. The only specialist nurses I had access to were a MacMillan nurse on the telephone (very helpful) and specialist nurses from Prostate Cancer UK (twice) also on the telephone. PCUK have a number you can ring anytime in the usual office hours. Otherwise, it is do your own research and establish your own contacts. PCUK has a facebook group where people share their experiences and ask for advice. It seems to me that every hospital is different in the help they provide, some much better than others.  I was given the telephone number /email address of my surgeons' medical secretary by a young temporary receptionist (not sure if should have given this out) and I have used this a couple of times.