Prostate Cancer

FormerMember
FormerMember
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Hello  to all. It’s good to know that you are here.

My husband has been diagnosed with PC. The world feels a little bit scary! He has a brain tumour as well….

  • Hi

    Sorry to read about what’s happened, has he had chemotherapy yet, or any type of treatment for the brain tumour ? PC depending on what stage he is, takes years before it becomes a problem, even then with the medication they have it can be kept at bay for some time. Has he had a biopsy yet for the PC ? Sorry to ask these questions, these things help us in giving the advice your looking for.

    I know you must be frightened about everything that’s happening, how is he doing ? I have incurable PC plus lots of other things going on, my wife is in tears sometimes, but my antics of being me soon have her drying her tears and giving me a smile. Try to let us know what the oncologist has said, never be afraid to ask questions, that’s what their there for to help, I presume you might have talked with McMillan nurses, they are excellent at speaking to people like yourself.

    Stay safe

    Joe

  • Carer44 

    Sorry to hear about this, but you are in the right place.  There are so many of us with the same thing in common.

    This online community will give you loads of good advice from people who have been and who are going through this.

    I remember when I was diagnosed in May this year, I was in pieces.  Advice from people here helped, knowing that you are not alone.

    My partner Tracey has been there always for me.  If you can just be there for your husband it will mean a lot.

    Best of luck.

    Steve (SteveCam)

  • Hello Steve and my apologies to Carer44 for piggybacking on her post. I haven’t been active over the recent few months, mainly because nothing has been happening. I had a colonoscopy about the same time as you and, as it was considered clear, I have decided to go ahead with hormones and radiotherapy. I have a phone chat with my oncologist next week and we’ll take it from there. I trust you are well and not regretting your decision to go this route too. 

    Thank you Carer44, this IS the best place for advice and support, there are really good people here. I wish you and your husband well. 

    Richard the Shellback 

    Richard the Shellback

    The situation is desperate - but not serious.

  • Hi Richard,

    I never got my Colonoscopy, my Radiation treatment finished on 2nd November and they have to wait until the Radiation is clear.

    It's been just over 11 weeks now and I still haven't heard back from the Freeman about how the Radiation went.

    I'm off work tomorrow so I think I might give them a call.

    By the 3rd week of the Radiation sessions, the fatigue was really affecting me.  Getting better now.  Still wearing incontinence pads when I go out (just incase, more of a dribbling problem now).

    Not for a minute do I regret taking this route.  I have come to terms with the Cancer, so if I have to get more Radiation treatment, so be it.

    I'm nearly finished my 3rd diary now, this one is entitled "Recovery".

    Hope everything goes smoothly for you.

    Steve (SteveCam)

  • Good to hear from you Steve, I’m glad you are doing so well. As I say, eternal vigilance is the price of dry trousers. I don’t think anger is going to beat you.

    Aw ra best China,

    Richard the Shellback

    Richard the Shellback

    The situation is desperate - but not serious.

  • hi, Richard, a little new to this I had 2 yrs of very bad leakage after a radical prostatectomy  there is a device called penal stop £30 to £60 this can help with drips also try to exercise the front muscle of the pelvic floor not as easy as it seems but if you can then drip-free good luck  ask physio 

    yours graham 

  • Richard,

    I nearly dropped my phone, crying with laughter when I read your comment, "eternal vigilance is the price of dry trousers".

    The funny thing is, it's true.

    I know, you need to keep your sense of humour.  I'd be lost if I couldn't laugh about things now and again and again...

    Still feel like I am in limbo, between the Radiation and knowing what happens next.

    I'm a lot stronger now mentally, just being able to talk about my Cancer to anyone (who is not sick of hearing about it).

    That's the beauty of this Online Community, we all share the same thing, just everyone's symptoms and side effects can be so different. 

    I have learned a lot from everyone here.  So much first hand knowledge.

    I'm in my 9th month since being diagnosed last May.  More ups than downs now.

    ...and... I don't half waffle on when I get started.

    Steve (SteveCam)

  • Hello Graham, thanks for your contribution, I had thought of deploying a spring clothes peg for that purpose but my wife says she needs them all to dry my underwear. Surgery is not an option for me but minor leakage is a pain in the organ of one’s choice. I shall take to heart your advice anent pelvic floor exercises, it sounds reasonably easy to attempt, at least. 

    A guy goes in to a butcher’s shop: “Do you keep dripping?” “Yes!” “Bloody annoying, isn’t it”.

    Best wishes,

    Richard the hilarious Shellback

    Richard the Shellback

    The situation is desperate - but not serious.

  • Hi Steve. I hold to the notion that I won’t worry about anything until there’s something to worry about. Not quite keeping my head in the sand, more retaining a positive attitude. I think it was Clive James, in his autobiography, who told about his worry that he had penile cancer, only to have his symptoms subsequently diagnosed as a freckle. I trust the medics. 

    Humour and a positive attitude are my defences.

    Those, my family and the people on this site.

    I note that it would appear that I signed off saying that I think that ‘anger’ will not beat you. While I am sure that’s true, because I suffer from overactive predictive text syndrome, it should have been ‘Cancer’, of course. 

    Keep waffling on brother,

    Richard the positive Shellback 

    Richard the Shellback

    The situation is desperate - but not serious.

  • lookup ams800  I got 1 fitted 99.6 dry but very expensive lucky if they agree to fit it  but the best thing I had out of this