Husband undergoing tests psa 219. Family don’t yet know.

Maggie, I do like your last sentence. That's the way to go.

With best wishes, Graham. 

Hi Maggie,

I am sorry that I may have misled you.  When I was diagnosed (23 Feb 21) I had had a biopsy and I knew I had a Gleeson score of 3+4 and that my cancer was caught early.  I was told my options and to go away and consider how I wished to proceed. It was during this period I told my children to get their views.

Note of Caution; Many well-meaning friends and family all had thoughts about what I should do, pub stories of mates fully recovered with treatment A or B or C . (There was a lot of noise).  Whilst this was well-intended I stuck with what I felt was right for me and my wife. I put my trust totally in my Urologist who was also my surgeon. 

My advice is to listen but to be true to your instincts.  Trust your consultant but don't be afraid to ask questions.

Good luck with everything. I am thinking about you.

Kind Regards

Martin 

Hi Maggie blue

Sorry is never a word you want to hear or read about a loved one, it’s a very trying time, so near Christmas as well. For me telling people sooner than later is best, giving them a Christmas present like on the day just ruins everything.
The white spots you saw, were they only on bones ? I myself have them on my bones in various places, I’ve had many scans and X-rays I always want to know what’s happening and what treatment can be given, then I want a plan B when that fails, whatever his medication will be, they will have his welfare top of their list. I know the oncologist team has meetings to discuss new patients and how they plan to attack the disease as I call it, so he will be in good hands.

Nothing wrong in crying, you should have heard my wife when we were told, they probably heard her two floors down in the hospital and I’m their calm as can be, trying to comfort her. Even now she worries about me walking up stairs, or if I cough anything out of the ordinary, so I know how you feel, scared, frightened, wondering why your husband why now. Unfortunately PC is a devil at catching you, just be positive and although there may be lots of appointments and scans etc, if your not sure about what their saying, ask them to repeat it, you need to know what’s going to happen.

Stay safe

Joe

Thank you Martin, we are talking it all through and indeed going with what feels right for us. Thank you for taking the time to reply.

Maggie