Hello - a bit about us

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My husband was diagnosed in February this year with Prostate cancer metastasized to his bones and lymph - Gleason Score 9.  The NHS said there's nothing they can do to cure, just treatments to prolong life.  Initially he was put straight onto Prostrap hormone injections and offered Enzalutamide and Radiotherapy,  However he didn't like the side-effects so in May, he ceased the Prostrap hormone injections and turned down the Enzalutamide and Radiotherapy choosing to try holistic therapies instead.  So far, although it hasn't been long, he's thriving.  He's due to see an oncologist on 1 October this year so we'll see what his PSA blood test reveals.  He's doing loads and loads of protocols and currently we're both feeling very positive and determined in this course of action.  But time will tell.

  • Sorry to hear Amanda

    I must say  I like the idea of going down the holistic route doing away with all those meds, hope that it works out.

    I would just like to add what I have done since treatment finished in 2017 as we all know cancer can return.

    I stopped eating added sugar, no biscuits, cakes, sweets etc.

    Cut down on red meat, dairy, alcohol, ultra processed foods etc.

    Just thought would mention in case it helps

    All the best

    Steve 

  • Hi Steve, thank you for your reply.  Yes we have cut out all sugar, processed and ultra-processed food and only eat organic wholefoods.  We do eat a little red meat but only bought from an organic farmer, whose cattle are grass-fed.  I make a few vegan treats like date and walnut oatcakes but again, no sugar and only organic wholefood ingredients.  My husband does eat a little dairy but again, carefully selected.  As to alcohol, we've both cut that out almost completely.  A treat once a month or so for him is now a pint of stout in a real ale CAMRA pub!  Or maybe a glass of organic red wine.  He is exercising like he never did before and keeps physically active all the time.  Our inspiration was a friend who got stage 4 breast cancer metastasized to her bone and lymph 5 years ago.  She was given 18 months and is still thriving following a purely holistic route.  We started off reading Chris Wark and The Gherson Therapy and have read lots of books since.  There's a lot of information out there for those who don't fancy the aggressive NHS treatments and their associated side-effects.  Thank you for taking the time to respond positively, much appreciated.  Best wishes Amanda (and Ron).

  • Ron's current "regime" is:

    All wholefoods and organic wherever possible.

    First thing in the morning:

    Modified Citrus Pectin, Zinc.

    Next juicing – 2kg carrots, 500g beetroot, bunch celery, large chunk ginger, large chunk turmeric, ½ garlic, green apple, lemon, spinach, broccoli – supplements added:  Moringa, Spirulina, Turkey Tail, Lions Mane, Soursop, Chlorella, Turmeric - this makes around 2 litres of juice, which my husband drinks throughout the day at regular intervals.

    Exercise – jogging and walking for about an hour.

    Breakfast: overnight soaked oats with rye flakes and apple cider vinegar, banana, summer fruits, overnight soaked pumpkin seeds and almonds, dates, dried apricots, dried figs, dried prunes, walnuts, sunflower seeds and superseed mix, Vitamin D3+K2 drops.

    With breakfast – supplements – Reishi, Turmeric, Lions Mane, Vitamin D3+K2, Ivermectin, Fenbendazole.

    Active throughout the day.

    In between drinking juice, green tea.

    Snacks during the day on fresh fruit and nuts.

    I make my own sourdough bread which my husband might have a slice of for lunch with organic baked beans or mushrooms, garlic and tomatoes, something like that.

    Main meal: usually raw chopped up vegetables with cheese or eggs or grass-fed beef or fish.

    Last thing:  herbal tea, Melatonin, Magnesium, Pure Cannabis Oil vape.

    Twice a week, my husband does an hour-long session of hyperbaric oxygen therapy.

    We’re still learning and adding things to this list all the time.  Currently awaiting an order of Berberine supplement, which will get included.

  • Welcome and good luck. I’m glad it’s all working out for you and you mental health is obviously benefiting so much with your joint positivity about the choices on treatment. I am sure you’re doing the right thing. It your life after all.

    I have a best mate that is strict keto or is he now carnivore (he lives alone in a beautiful house boat) and has rid himself of diabetes totally and self tests annually all his bloods. He eats meat, fat and little else. His no carb diet is strictly for his own health.

    I would argue that his cholesterol is a concern but the results speak for themselves.

    As for his advice about ridding my cancer with no-carb, which I haven’t taken, I find it hard to accept it would be good for me. Yes, I’m veggie, that in itself it not terminal but it is a choice that I’m happy with. The “facts” which Dr USA has convinced him of the error of my ways are interesting to a point. I also believe that there are drug companies that prefer endless treatment rather than cures, but we all have to make a living.

    I take my hat off to you both and hope that all your efforts are seen to be body-positive in all the tests you have which I hope you will post here later.

    I don’t know how old you are (I’m now 61) but I wish you a long and healthy pathway. 

  • Thank you for your lovely positive comment.  My husband is 67.  We both admire that your friend has eliminated his diabetes with keto/carnivore.  Diet accounts for so much.  Yes I will post results as we get them - next PSA results will be 1 October and what that reveals will be crucial in how we go forward from there.

  • The PSA will be the new data that’s essential for your plans. I hope it’s in your favour.

    We will be here eager to help you both whatever the results. Take care.

  • Hi  Lovely to read your positive post. My husband follows a strict diet- whole foods, low meat high protein no rubbish, lots of exercise and he feels better for it, though he always has been very aware of the benefits of "you are what you eat'. Your daily routine sounds good and is making me feel that we need to brush up on things a bit more. (we both shared a large cream eclair in the weekend)

    I think there's something to be said for living your life without the intervention of drugs and going for quality of life, rather than feeling unwell all the time. I think it's very important to keep monitoring where you are with regular PSA tests so you can keep track though. You didn't say what your husbands original PSA was?? we are a lovely bunch of people, but oh laws we love a PSA score to mull over. 

    The hormone treatment is certainly a lot to get used to and I can see why life without it is preferable, but I don't understand turning down the Radiotherapy. It's very targeted these days and effective at killing off a large bulk of multiplying cancer cells. Years ago it was less targeted and would possibly involve a margin of error. Not now, my husbands RT was so precise that if his tumour was not in the correct place for the beam it wouldn't switch on. If you have a moment look up the MRIdian linac. Just to keep informed about whats out there. But again I do understand your choice.

    The other thing I feel compelled to share with you is the use of "Ivermectin" My daughter is a vet and uses this to worm large animals of parasite infestations, she says it will strip your gut of all it's good bacteria and potentially damage the gut lining causing serious problems in humans. It's one of those drugs that anti vaxxers were keen on in covid with the concept of thinking a virus could be expelled like intestinal worms, which is not the case. Ivermectin does have anti inflammatory qualities  but as yet there's no proof that it works for cancers. Again it's a personal choice to use animal medicine instead of human. The same with" Fenbendazole" it is also an animal medicine / wormer. Taking both of these together is quite frightening to me. Your husband must me sitting on the loo constantly. 

    I hope you don't mind me commenting on this.

    The other things you are doing are amazing, lots of healthy foods. Perfect and very inspiring.

    Best wishes to you both and keep us posted on your progress as we all have things to learn and having feedback from having a healthy diet and refusing treatment is extremely important to share the results. Mr BW has followed his treatment plan completely and it's not been the easiest journey sometimes. 

    Lorraine x

  • Thank you Lorraine for your very positive response.  My husband's PSA was 21.9 initially and when last tested at the beginning of July was 0.2.  He'd had 3 monthly Prostrap injections by then since his February diagnosis, which he then stopped having in May.  So the next PSA test on 1st October will be important.  As to Ivermectin and Fenbendazole, no side-effects to report so far in the 3rd week.  We realise it's controversial but willing to try it.  I'm actually also taking the Ivermectin and Fenbendazole as a one-off 30-day "cleanse" treatment.  My husband is also doing a daily coffee enema as per The Gherson Therapy, again controversial. We do have a friend, who we've known for over 40 years, who was diagnosed 5 years ago with Stage 4 breast cancer metastasized to her bone and lymph.  She was given 18 months to live and has only chosen holistic treatment and is thriving.  She's recommended a lot of reading to us - Chris Wark and The Gherson Therapy being the first two books we read.  Since then we've read many more and watched endless documentaries.  I've just joined this forum and a couple of others on social media this week, to see if I can learn anything else.  We did attend a Macmillan "coffee and natter" a couple of months ago but they didn't have any green tea and everyone seemed to be eating cake!  

  • lol . Hilarious with the cake,

    PSA of 21 seems quite low for spread to nodes and bone. Gleason 9 is pointing towards a fast growing aggressive cancer though. Would you consider going for a second opinion privately? Get another take on it? 
    Sorry I guess I’m too invested in conventional medicine to get my head around taking worming tablets. I want to have an open mind though. I am really interested in what’s next, if your husbands PSA stays down and for how long. Now you are in this forum please keep us posted. 
    also if you have time would you copy and paste your details in your bio as that’s really helpful to others . 
    All the best to you both x

  • Thank you. We did ask for a second oncologist opinion, which was the same as the first. Full body bone scan and biopsies resulted in the Gleason Score 9. No cure. That was the verdict of both oncologists. Life expectancy 1-2 years without treatment and 50/50 chance of 5 years with NHS treatments. My husband didn't want Life revolving around hospital appointments and hideous side-effects. And I think I'd feel similarly in those circumstances. Our lifestyle has changed drastically and is mainly just anti cancer routines. But we go away now every month for lovely breaks from it for 2 or 3 days. Kissing heart