New diagnosis

Hi there,

My husband was daignosed in September aged 56 with a Gleeson of 7 but PSA OF 69.5. Spread to seminal vesicles. The waiting for the 'picture' to form is SO SO hard and actually worse then the knowing. At least with the knowing you are presented with a choice of treatments and adapt to the new 'norm'.

Keep strong - there are plenty on this forum who bare witness that even if there is spread there are useful treatments and always always hope.

My husband is on hormone injections and waiting the radiotherapy.

Roll on the 14th December and hoping for good news for you both.

Wispmydog x

Thank you for your support. Sorry you  have also found yourself on this journey. Hubby has started the oral tablet with injection in two weeks. During the meeting with the nurse they mentioned chemotherapy and radiation so not sure which way next. Trying not to Google and guess our pathway. Have to agree having a firm diagnosis will give clarity. X

The waiting  is the hardest,  I have just finished  a course of radiotherapy,  now having to wait 3 months before  seeing my oncologist.  I was advised  to "park it" till then for coping I keep myself occupied,  finding lots of jobs to do in the house, keeping  my mind occupied,  read alot of books ( not medical),I also have  Christian  faith, which helps keeping me  positive.  Hope this helps.

Thank you . Starting to make task lists to keep mind occupied. Faith can be a great comfort. 

Hello A65. I was diagnosed in August, had spread just outside the prostate he said. Was told I would need a bone scan to determine if had spread any further. Bone scan was done quickly then it was a 2 week wait for results. Referred to Oncologist who told me I have 2 lesions in my right ileac bone, treatable but not curable. On Prostap monthly and start radiotherapy tomorrow x 6weks, then chemo after that. Writing this as I have accupuncture( for the hot flushes and sweats) x 10 weeks. I have accepted my diagnosis but my wife hasn't as yet..My psa fluctuated between 9 and 13 over 2.5 years and she feels I should have had mri scan much earlier.

As for the waiting I just tried to get on day by day and not think about things too much. I really hope all goes well for your husband and send best wishes. 

Kind regards, Graham. 

Thank you Graham, day by day and keeping busy seems like the way it will be for the present.  

A65

Firstly, my thoughts are with you and your family as will many on the forum will be.

My diagnosis  is also 4+5=9

Aggressive Locally Advanced Prostate Cancer, I'm 62

Waiting is hard, and I hope that you hear all the right things.

I kept on telling myself that " it is what it is and will be what it will be" and knew whilst waiting to deal with it that I had to be strong.

I drew up a plan of everything that I wanted to do on a daily basis to keep me occupied.

Didn't worry if the list was not all ticked off each day, but I did my best whilst still finding time to rest.

I found reading a great way to relax and also used mindfulness and calming relaxation music a great way to cope and even bought myself this biggest jig saw that I could find.

Each day (and I still do to this day) I wake and think "OK" what's  going to be beautiful about today "even if it throws things at me I still search for something"   

Each evening I think well "whats made me smile today (even on my worst day) it could be someones action, a memory, a gesture or something you've seen). A smile works wonders and is never far away if you dig deep.

I also think that the biggest part is talking to people, Macmillan gives you that chance.

I also visit Maggie's as I have done since i was first diagnosed they mean everything to me and more.

If you don't know what Maggie's do please look them up, people to talk to if you want to or a place to sit and just sort life out in a peaceful environment. 

Please feel free to read my profile.

And stay safe and strong  

Will be thinking of you both on 14th December, Take Care 

Spud

"you don't know how Strong you are,

until being Strong is your only choice"

Bob Marley 

So sorry to hear of your husband's diagnosis A65. It is not a nice time waiting for scans or results, I found macmillan councillors were really good for me and my family, especially dealing with my 2 children. I was diagnosed in March this year with stage 4 metastatic prostate cancer Gleason 9 and once I  started on the treatments my PSA dropped, there are alot of treatments about now. I wish you luck for your husband's upcoming scan. 

Thank you for your wonderful advice. I am sharing these with my husband hoping we can find that new normal while we wait. Sending best wishes to you and thanks again for sharing your thoughts. 

• Thank you . I think councillors will be a good tool to use we also have children and knowing how and when to share the diagnosis is something that is sitting on our minds.