Prostrate Cancer,

FormerMember
FormerMember
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Hi everyone, just to say I am joining as a newbie, and here to learn from those who have already more experience about how Prostrate Cancer can effect our daily lives.

I began having a change last year, I found spots of blood after passing P. Also I had increased visiting the toilet, up too 9 / 12 times a day.

I thought it was just a infection as I had been having a couple each year, and this was confirmed each time after a UTI test in the surgery.

I was invited to have a PSA last year and the results showed it was high.

My doctor contacted me and told me he was concerned.

All this was taking place on the telephone due to covid 19, I had not been examined at anytime.

He informed the urology dept at the hospital and after a few days they rang me for a telephone conversation with a consultant.

After a further PSA which took place a good six weeks later, I received a further telephone call from the consultant to say the PSA had risen higher, to which he said you have Prostrate Cancer and it has most likely travelled to your bones.

Given the news he sent a letter to my Doctor saying they should start me on Hormone Treatment.

That is where I am at the moment.

Please note I have not been physically examined by any one, I also have not been seen by a Dr or Consultant since starting the requemended Hormone Treatment injections.

Only the Nurse at the surgery has been the only person I have had a face to face with during the administration of the 3 monthly injection. My experience from the start has all been on the Telephone it’s been pretty hard going. But I have tried to be positive.

Its all been and is very worrying, getting caught up in a pandemic, it’s know doubt been the  cause of the lack of contact face to face.

Thank you so much for reading my very verbose message, is there any one else who is having the same experience ?

 

  • Hi Brotherton and welcome

    Can u give us some idea of last few PSA results. Importantly have u had a MRI or biopsy because without these can't see how they can say the cancer has spread unless the PSA is ridiculously high.

    Steve

  • The procedure that was followed with me was Hormone Therapy, CT Scan and Bone Scan appointments, biopsy followed by appointment with Oncologist to agree longer term treatment plan. Your PSA maybe is a guide as to the speed of action. So far the response from my NHS region has been very good.  

  • FormerMember
    FormerMember in reply to Grundo

    Hi,

    37.7 went to 52.0 ng/ml he considered it a high increase.

    Thank you Grundo 

  • FormerMember
    FormerMember in reply to Sussex20

    Thank you, we think it could be my age, in reference to the invasive procedure .

    and they do not use a MRI Scan with folk who have a pacemaker. 

  • 37/52 not massively high. need some confirmation really, I think that you can have a CT scan with a pacemaker plus a biopsy, u should push for more tests