Hello all
I've just been diagnosed with PC and am very nervous that I have agreed to start an Active Surveillance plan. Any help, experiences, advice would be welcomed
Hi Skinwiz
Yours stats r quite low so u are a good contender for AS.
I was on AS for 4 years, it was ok if a little stressful at times.
Staying on AS just means you can put off the possible side effects from any treatment that u may have.
Difficult one though because I recognize that you probably just want to get it over with.
Try and talk it through with your specialist also see what others say.
Steve
Think of your cancer as a car at the top of a slope. With no brakes on. Will it just sit there, or is the slope steep enough for the slightest air movement to start it moving? Let's Actively Surveille it. And why not? But once it starts moving, it will accelerate, even with a shallow slope. If you are going to stop it, it's much easier to chuck a chock under the wheels as it inches forward, than wait until it's thundering down the hill at 63mph.
To horribly over-simplify, active surveillance in the elderly is because they have a very good chance of dying of something less unpleasant before the PCa gets nasty. But active surveillance in the younger patient is simply about keeping the weapons dry until you know they're needed. But if they're needed, they're needed.
"We've only got 200 rounds of ammunition, Jim"
"Don't shoot until you see the whites of their eyes, then make every shot count."
Warning: Real life isn't as simple as analogies ... but you get my drift.
The key to active surveillance is that it's active: you need to get whatever tests have been agreed, at the time they're agreed. You will need to see the urologist if you get an abnormal result, which means you need to know what you're looking for. AS can work, and work well, but you need to be involved with it.
- - -
Heinous
If I can't beat this, I'm going for the draw.
Meanwhile, my priority is to live while I have the option.
I only went for treatment because the tumour was nearing the capsule edge, something to watch out for.
Yes good idea , wait for first ob and take it from there
Steve
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007