Hello

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Hello.

I'm new and absolutely scared. 

I have a diagnosis of T4 N1 M1b prostate cancer and I don't know what to do with it. Most of the time I'm feeling numb. I don't really think about the subject. I not trying to avoid it, probably it is my way to deal with it.

I've already started my hormone treatment and my PSA went from 191 to 4 in a month.  

Next week I'm having my Enzalutamide treatment.  Pain in my legs, especially my left leg, and evening swelling of both feet.

I don't know what else to say.  I'm sorry.

  • Hi Tati

    Sorry you feel the way you do, it’s understandable, if I can ask what is your age ? Being here is a good sign and there is plenty of people on here ready to help and give advice.

    Has the cancer broke out of the prostate ? in my case it’s in my bones, have you seen your doctor about the swelling in your feet ? It may have nothing to do with the PC.

    No need to be scared, I’ve had this for over five years, still going strong albeit a little slower, try and be as positive as you can, never give up its half the fight.

    keep talking to us.

    Stay safe

    Joe

  • FormerMember
    FormerMember in reply to joeven

    Jo what age are you my husband is 53 the cancer has grown out of prostrate and is his bones I hope he too is here in 5yrs too . I’m so scarred I have cried EVERY DAY since we found out 6 months ago 

  • Helo Joe.

    I'm 57.  Stop going to the gym but regularly I'm doing 100 push up every morning and some biceps and sit-ups. 

    Need to talk to my doctor about the pain and swelling of my legs. 

    Very tired at the end of the day but I work as a Primary Reception TA, so really busy with 5 years old children.

    I'm trying to be positive and my work and wife are helping a lot. 

    Thanks for the reply.

  • Hi

    I’am 69 and the easiest going person you could meet, when I was told I just said get me past Xmas ( my favourite time ) but if there’s one thing I’am it’s being positive and forever doing what I can to battle this thing.

    At 53 I can only say he’s got plenty of years in him, has he had chemotherapy? Or radiotherapy? Plus hormone injections.

    I went on a stampede trial hormone, six chemo sessions, short break then radiotherapy, now I’am still on the prostap 3 injections every 90 days and taking enzalutamide. 
    I can understand your feelings, my wife who’s my carer, worries and stresses about me going up the stairs, or if I have a cough ( not covid) literally anything. My advice is new medication comes out all the time, don’t know how your husband is being treated, but there’s always a plan B, when I see my oncologist I ask what’s the back up plan, if one stops working move onto the next, that way you both can enjoy life, there will be bad days, I just smile and carry on, my sisters and grown up children are always worried but then I do something daft and it brings a smile on their face.

    Just be positive, he relies on a friend be there for each other.

    Stay safe

    Joe

  • Hi Tati

    After my treatments and about a year later, I did the gym thing for six months then covid hit and that stopped, so I just do a bit here, not that much as I have other problems.

    Its good you work, keeps your mind off things, it is very tiring I can vouch for that, having a partner really helps, read what I wrote above.

    Trying to be positive is a good thing, you have to take time out for some enjoyment, wether it’s a meal out, a short few day break or whatever you like doing best, it’s just a bit of relief, we’re not robots, glad your seeing the doctor, try to get in asap tell them your a incurable cancer patient and need to be seen, ( they may well know your condition ) 

    Stay safe

    Joe