Hello.
I'm new and absolutely scared.
I have a diagnosis of T4 N1 M1b prostate cancer and I don't know what to do with it. Most of the time I'm feeling numb. I don't really think about the subject. I not trying to avoid it, probably it is my way to deal with it.
I've already started my hormone treatment and my PSA went from 191 to 4 in a month.
Next week I'm having my Enzalutamide treatment. Pain in my legs, especially my left leg, and evening swelling of both feet.
I don't know what else to say. I'm sorry.
Hi Tati
Sorry you feel the way you do, it’s understandable, if I can ask what is your age ? Being here is a good sign and there is plenty of people on here ready to help and give advice.
Has the cancer broke out of the prostate ? in my case it’s in my bones, have you seen your doctor about the swelling in your feet ? It may have nothing to do with the PC.
No need to be scared, I’ve had this for over five years, still going strong albeit a little slower, try and be as positive as you can, never give up its half the fight.
keep talking to us.
Stay safe
Joe
Helo Joe.
I'm 57. Stop going to the gym but regularly I'm doing 100 push up every morning and some biceps and sit-ups.
Need to talk to my doctor about the pain and swelling of my legs.
Very tired at the end of the day but I work as a Primary Reception TA, so really busy with 5 years old children.
I'm trying to be positive and my work and wife are helping a lot.
Thanks for the reply.
Hi
I’am 69 and the easiest going person you could meet, when I was told I just said get me past Xmas ( my favourite time ) but if there’s one thing I’am it’s being positive and forever doing what I can to battle this thing.
At 53 I can only say he’s got plenty of years in him, has he had chemotherapy? Or radiotherapy? Plus hormone injections.
I went on a stampede trial hormone, six chemo sessions, short break then radiotherapy, now I’am still on the prostap 3 injections every 90 days and taking enzalutamide.
I can understand your feelings, my wife who’s my carer, worries and stresses about me going up the stairs, or if I have a cough ( not covid) literally anything. My advice is new medication comes out all the time, don’t know how your husband is being treated, but there’s always a plan B, when I see my oncologist I ask what’s the back up plan, if one stops working move onto the next, that way you both can enjoy life, there will be bad days, I just smile and carry on, my sisters and grown up children are always worried but then I do something daft and it brings a smile on their face.
Just be positive, he relies on a friend be there for each other.
Stay safe
Joe
Hi Tati
After my treatments and about a year later, I did the gym thing for six months then covid hit and that stopped, so I just do a bit here, not that much as I have other problems.
Its good you work, keeps your mind off things, it is very tiring I can vouch for that, having a partner really helps, read what I wrote above.
Trying to be positive is a good thing, you have to take time out for some enjoyment, wether it’s a meal out, a short few day break or whatever you like doing best, it’s just a bit of relief, we’re not robots, glad your seeing the doctor, try to get in asap tell them your a incurable cancer patient and need to be seen, ( they may well know your condition )
Stay safe
Joe
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