Hi, I just want to say hello.

FormerMember
FormerMember
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Hello, I was diagnosed with Gleason 9 metastatic prostate cancer March 2021. Oh did I go downhill, had dreadful sleepless nights, all I could see was doom & gloom and I ate far too much cake.

Now that I have the triptorelin injections, enzalutamide tablets and a careful diet, life is great, I am positive once again. I now go about my life albeit a little slower, but I no longer dwell on the cussed cancers.

So if any one else is out there who has just been diagnosed, please, please, keep looking forward to tomorrow, metastatic prostate cancer cannot be cured, but it can be kept in check.

Also, I would like to thank all the staff at The Urology Centre at Nottingham City Hospital. I do appreciate all that you have done for me and the support you have given me. 

  • Thanks for this post Rod68, very uplifting.

    Ido4

  • FormerMember
    FormerMember

    So inspiring. I needed this. Thank you.

  • Hi rod I have just read your message, I was diagnosed with advanced prostate cancer spread to lymphs and bones in January, Gleason score 9, also did the woe is me, what have I done to deserve this, to acceptance got a life to live. I am on the same meds as you, psa now 0.02 and still going down. Thanks to Sunderland Royal Urology and Oncology also Freeman Oncology great treatment and care.

    Its a great uplift to see you are having a successful treatment, long may it continue

    Ulls

  • FormerMember
    FormerMember in reply to Ulls

    Hi Ulls, I thought I was doing well getting my psa down from 537 to 4.6, but 0.02 wow, well done ! What is your secret?

    Mine has spread to all of my torso along with spots on my lungs, but I have come to the same conclusion as you, we have a life to live and I am going to enjoy it. I recently bought myself an e-bike so that I can enjoy cycling again without putting too much strain on my body, I need the exercise after 4 months worth of cake.

    Nice to hear you are being positive too.

    Rod

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Robert,

    There are so many of us out here with the same problem and a lot of us are not going to give in without a good fight, so if you need your spirits lifting we are here.

    You know where to find us.

    Rod

  • Hi Rod, no secrets, just a couple of months in advance of you, and 4 enzalutamide a day, exercise is a 5k daily walk and about 1 hour resistance band work out both are painful but manageable.

    I am diabetic so careful with the cake

    Ulls

  • FormerMember
    FormerMember in reply to Ulls

    Hi Ulls, that is some going, I'm not sure that I could manage the resistance band.

    Providing it is not raining, I try to cycle between 8 and 20 km per day, the electrical assistance on my bike means that I can now cycle without getting to breathless. As Covid restrictions have been eased, my local dance hall will be re-opening in a couple of weeks, so I have polished up my dance shoes and I hope to get some further exercise that way, however the jive is now a no no.

    Has the triptorelin injection increased your sense of smell? it has with me, I now know what it feels like to be a bloodhound.

    Rod

  • Hi Rod, the resistance bands aren't to bad, 10, 20, 30, 40, 50 k, can be mixed to suit each exercise, I started using them when I stopped cycling due to arthritis in both feet knees and left hand, I can't use the brake without pain. Good to see you enjoy cycling I really miss it. 

    Both my wife and I have never been good dancer's, jiggling about to pop music is the best we can do. 

    I had my face damaged when I was a child and have had no sense of smell since, comes in handy on occasion, there is always a silver lining.

    Ulls

  • FormerMember
    FormerMember in reply to Ulls

    Hi Ulls, sorry to hear of all this, life really has thrown everything at you.

    My Dad had severe arthritis, hence I can understand your pain.

    I used to go dancing many years ago, my wife didn't enjoy it so I stopped, Unfortunately she passed away some 9 years ago, so when I retired I took it up again, then Covid lockdowns stopped me.

    In time, old age and creaking joints may stop me from walking, cycling and dancing, but I will not kowtow to cancer.

    Rod

  • Hi Rod sorry to hear about your wife, but pleased you are getting on with life. I've read Zumba is great exercise Blush.

    I fully agree to your attitude to cancer, never give in look for the silver lining.

    Ulls

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