Hi All
Just joined this forum as Dad diagnosed as terminal in May 3yrs after initial diagnosis-hormone therapy stopped working. PSA measured as 217 in June and now 470 so it's going like the clappers. Feel cut adrift as nothing more can be done for him so Oncologist doesn't need to see him anymore. Palliative care nurse came for the first time last week and offered him anti-depressants and counselling which he was reluctant to do as he says 'he knows why he's depressed' but this week he's agreed to start taking them.
He has a catheter and nephrostomy tube fitted just to complicate things.
He's been in bed for almost 3 weeks and every week is a constant battle to chase district nurses, the GP, OT's and physio's to get him the help he needs. I really worry how people with no family to chase up on things for them cope-they must just get put to the bottom of the pile. None of them ever do what they say they are going to do and you get made to feel like a nuisance for chasing them but honestly what else can I do? Just hope something will get done eventually?
Other people tell me they have been assigned a dedicated Macmillan contact but I haven't been offered anything like that so I'm hoping this forum will provide me with some comfort and practical tips.
