Prostate cancer that’s spread to the ‘tubes’

FormerMember
FormerMember
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Hi All. I’m new here. My 78 year old dad was diagnosed with PC a couple of weeks ago and has since had a bone scan and MRI. He’s not very good at relaying what he’s been told bless him, but from what I’ve picked up on he now knows the following. 
PSA 15, his ‘score’ (maybe something to do with Gleason?) 3, not spread to bones, MRI shows it has started to spread into the ‘tubes’ (assuming these are the tubes semen is carried). They have discussed hormone therapy and possibly radiotherapy. 

Does this sound familiar to anyone else? What can we expect? Does this means it’s been caught relatively early? It’s been a horrible few weeks just looking for some reassurance. I’m such a daddy’s girl Broken heart 

I wish you all well on your journeys, whatever path you might be on xxx

  • Hi RORo 

    Sorry to hear about your dad.

    Looks like just escaped the gland and spread to seminal vesicles classed as T3b.

    Still possibly curable and hormone therapy and Radiotherapy would be the best way forward 

    Looks like non aggressive with a PSA of 15 and Gleeson of , I presume 3+3.

    So there's plenty of hope for him, hope it all works out ok, come on here anytime with regards to queries u may have 

    Best wishes

    Steve

  • FormerMember
    FormerMember in reply to Grundo

    Steve, thank you so much for your kind reply and reassurance. It’s such a minefield all of this and I don’t want to probe my poor dad too much. He only went for a bit of an MOT so it was a shock for this to come up! A blessing though I guess. Xx

  • Yes, looks like they got it just in time, sigh of relief, as I have already said, come back any time, there r plenty of people on here to help u.

  • FormerMember
    FormerMember in reply to Grundo

    Thank you Steve. I will. I’m sure there will be many questions.

    all the best 

  • Hi roro sorry to hear about your dad, being diagnosed with cancer is a very confusing and worrying time, so I'm not surprised that he did not pick everything up. Normal a letter will be sent to your doctor, and a copy to your dad, this might give you a greater understanding of the diagnosis. Let us know how he gets on, good news is always welcome.

    All the best Ulls

  • FormerMember
    FormerMember in reply to Ulls

    Ulls, thank you. I’ll ask to see dads letters if he doesn’t mind. Should give us all a better understanding if I can then look up the information and try and explain. 
    thank you, great idea 

    RoRo xx

  • Hi Rory and welcome to the forum. Sorry to hear about your Dad, but as others have said it sounds like T3BN1M0 which is definitely treatable with hormone therapy and radiotherapy.

    I was diagnosed at the age of 71 in 2018 as T3AN0M0 with a PSA of 15 and a Gleason score of 5+4=9. I have just completed three years of Prostap injections and had 20 sessions of radiotherapy in Feb/Mar 2019. My PSA had dropped to 0.4 when the RT started, had dropped again to 0.1 at the end of the 20 sessions of RT and has been undetectable since. It's been a long road and took 6 months to get fit again after the RT finished but I am now walking 20km a week, swimming 1200m twice a week and rowing at least once a week.

    I hope your Dad's treatment goes well and keep in touch here and ask any questions if you're unsure of anything.

    Yesterday is history, tomorrow is a mystery and today is a gift.
    Seamus
    (See my profile for more)
  • Sorry should be Roro not Rory, autocorrect strikes again!

    Yesterday is history, tomorrow is a mystery and today is a gift.
    Seamus
    (See my profile for more)
  • FormerMember
    FormerMember in reply to Seamus47

    Hi Seamus, thanks so much for your reply. Your situation sounds very similar to my dads and does give me hope. 
    The thing that concerns me is that my dad has a lung condition called Hypersensitivity Pneumonitis (aka farmers lung) which has caused scaring to his lungs. He struggles to catch his breathe and this has an impact on how active he is. He’s also susceptible to chest infections if he gets a cold. Currently has one now. This may affect his recovery I fear. 
    How does the hormone treatment and radiotherapy affect you health wise? Also, do the two usually start together? Dad seems to thinks they are trying the hormone therapy first

  • Radiotherapy won't start until he has been on hormones for several months. This is to allow the HT to shrink the tumour and the gland prior to RT making the target smaller and the treatment more accurate. It's usual to start with Bicalutamide for 28 days having the hormone injection some time in that period. This is to prevent tumour flare when the HT starts. I only had three days of Bicalutamide before my first Prostap injection but most get a week or two. The side effects of Bicalutamide can be more difficult to cope with than the HT, but it's only for a month.

    Please ask if there's anything else you need to know.

    Yesterday is history, tomorrow is a mystery and today is a gift.
    Seamus
    (See my profile for more)