Newly diagnosed with Prostate Cancer

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Hi,

I've been recently diagnosed with Prostate Cancer, about 5 weeks ago, just started the Hormone treatment.  Finally able to tell people that I have cancer without bursting into tears.

My memory is getting worse, even before I was diagnosed.  Don't know if I found this on Macmillan, an App called Vinehealth.

Download it, it's great for recording your symptoms and how you feel. Throughout the day you can update how you feel and you can see reports of your progress.

For me,the medication reminders are great,takes a while setting them up, especially when you are on as many tablets a day as I am on 

One more thing, hospital appointment reminders. This is the best App I have seen so far.

I'm sure this will be a big help in my beating this Cancer.

  • Hi Stevecam. I'm sorry that you have to be here but welcome to the forum anyway. There are lots of people here who can help with any problems you may have. Please let us know about your PSA and cancer staging (TNM) as that will allow us to get a better understanding of your case.

    I have just finished a three year course of hormone treatment and had 20 sessions of radiotherapy back in Feb/March 2019. So far all is well and my PSA is undetectable. My next PSA test is in December when things might start to change.

    Yesterday is history, tomorrow is a mystery and today is a gift.
    Seamus
    (See my profile for more)
  • Seamus, my PSA was 12.2,. I don't know what the staging is.  I get to see the Oncologist on 30th July, might find out then unless I have been told and it went straight over my head.

    Anyway, glad to hear that all is well with you.

    I have only been on hormones for nearly 3 weeks and have already started the crying for no reason. Only had 1 Hot Flush so far.

    Steve (SteveCam)

  • Hi 

    Have you had a biopsy yet ? PSA they can take from blood results, biopsy gives you a Gleason scale and what stage your at, eg I had a PSA of 893 a Gleason of 9/10 and stage 4 hopefully unless you do not want it done, this will provide all the information for you and how best to treat the PC.

    stay safe

    Joe

  • Hi Joe.  It's a bad day today. I can't think, concentrate or anything. I am trying to keep working as it's like therapy to me. It's only an admin job at an abattoir, but I enjoy it.  The concentration keeps me going.

    Had my biopsy,came back as an 8. Out of 29 biopsies,9 came back with cancer, some aggressive.

    Started on hormone therapy, tablets and then a 6 month injection last week.

    Looks like 4 weeks of radiation therapy in September and October.

    Steve (SteveCam)

  • Hi Steve

    There will always be bad times, concentration, nausea, some people get away with it, others not so, with my meds I feel like I’am one step in front or one step behind myself, not a great feeling.

    you do get used to it, just keep being positive it’s important helps with concentration.

    stay safe

    Joe

  • Thanks for that Joe, l know there will probably be more good days than bad.

    Thanks

    Steve

    Steve (SteveCam)

  • Stevecam

    hi,

    your in a place that has people who are here to talk to whenever you want to.

    Its hard to come to terms with it at first and sometimes the same questions go around in your head all the time.

    Please feel free to read my profile.

    It took me 8 months to cry for some reason, but it so does you good to release how you feel at times.

    I finished chemotherapy in April  (6 cycles) and have been on hormone injections monthly since day one.

    Next Wednesday I start Radiotherapy 20 sessions mom-fri

    My memory has gone terrible and I carry a small note pad and a pen around everywhere I go.

    Its good you are trying to work, however it must be hard concentrating.

    I’m 62 btw.

    Good luck with your treatment and never forget this forum is full of caring people who will always chat back, whatever the questions.

    Take care and stay safe

    Spud

    ”You never know how Strong you are,

    until being Strong is your only choice”

    Bob Marley

  • Hi Spud

    just a quick bit of information, the mental state we call chemo brain, your memory will get better in time, it’s just a bit of a devil putting up with it.

    Good luck with the radiotherapy, you should be fine with that, when I had mine and I was on the table, you get used to the sound of the beam coming on, I used to say to myself kill it kill it ever time I heard the beam come on, just a bit of positivity.

    Stay safe

    Joe

  • joeven 

    Thanks Joe,it's nice to know the memory will sort it's self out. 

    As for my Radiotherapy 

    "Kill it" it is  then, I hope that you don't mind me using it as well.

    I'm sure it will help.

    Nice to chat 

    Spud

  • Hi Spud, thanks for that. I read your profile. I don't want to think as far ahead as getting the Radiation therapy.

    A good piece of advice l had from a Men's Cancer Group at Maggie's was "Concentrate on today and don't think past your next appointment."

    I couldn't go for Chemo or surgery, may only choices were:

    1. Radiation therapy
    2. Do nothing and wait 

    Not much of a choice really.

    It's the tiredness and not getting much sleep that's the problem at the moment.

    Cheers

    Steve

    Steve (SteveCam)