hi,

Hi MD 

You don't say what your PSa or Gleeson are, I presume low.

If that's the case and the MRI shows that tumour not too large or near the border then AS is ok, I was on it for 4 years.  If u have yearly Mri and regular PSA to monitor should be fine.

U can opt for surgery or Radiotherapy but both can potentially come with side effects especially the former but obviously not always.

If they r suggesting AS them prob try it for a while, see how it goes 

Regards

Steve

hi grundo, 

sorry gleeson was 6  , 3 out of 12 biopsy samples bad on the left, what is your situation now after 4yrs, were you offered brachytherapy or are you still on  AS my issue was PSA didnt identify cancer last 2 results were 2.9 in 2019 and 2.5 this march!!!

Hi

In my way of thinking, because your only a T2 then they might offer hormone therapy, but it, just depends how the oncologist see it. You have plenty of time on your side so don’t worry, things are on your side.

Stay safe

Joe

hi joe

thanks for that , i am awaiting a call from clinical nurse for the waiting times for treatment down here in west wales, having first psa since diagnosis next week, so see where we are then.

md

After 4 years I went for Radiotherapy, that was 2017, everything ok at present.

Your stats r very low, infact PSa doesn't show cancer.

Do u know what shows on the MRI in terms of size in mm?

But no wonder they are suggesting AS with your figures.

Steve

Active Surveillance is OK so long as the Surveillance is really Active. You need to be clear on the 'rules' - how often you'll get a PSA and MRI and so on, but it maybe down to you to make sure they happen. And, probably, down to you to check the results and create a graph of your PSA. And in some cases it'll be down to you to visit your GP armed with that graph and a lethal weapon and demand treatment (that's a fairly unlikely scenario, but with some GPs, not impossible).

Provided you are willing to actively manage your health (and why not?), you may have several years before you need a side-effects-heavy intervention.

Good Luck!

no psa was not indicative of my diagnosis, I had a leakage of clear fluid from gland just below prostate, lucky to spot it really only happened 3 times over about 12 weeks, paid for own consultation because of waiting times, paid for mri which results in consultants words were indeterminate?? then had biopsy on nhs 2 weeks later 3 out of 12 samples were bad, sorted 1st psa test next week 3months after diagnosis.

md

yes totally agree you have to be in charge, but getting the right advice is a minefield

md

Stay on Active Surveillance without any form of treatment so long, as Heinous advises in replying to you, it really is active. You don't want to undergo ANY of the treatment options unless they are absolutely necessary.

Because MRI inconclusive def wait a while, more psa's and another MRI 

Steve