Hi all I’m new

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Hi all, I’m 58 and have been recently been diagnosed with PC . My PSA is 203, last week a had CT and bone scans plus a biopsy. I know only that my bone scan was okay, waiting for an appointment with my team to find out how aggressive or not the cancer is . I decided to have my prostate removed but after my biopsy my consultant said he didn’t think that would be an option for me because of my PSA number.I was disappointed because I thought that it would eradicate my cancer, I would like to ask anyone out there that may have some advice that have experienced this as it is completely new to me.. I would like to thank Victoria for helping me today.

  • Hi Tony, you should have two consultants, a surgeon and an oncologist. You seem to be getting your info only from a surgeon. If he thinks surgery is not advisable, you need to see the oncologist.

    But radiotherapy is just as curative as surgery, you have nothing to fear in that respect.

    I think you need to wait until all the tests have been done: once you get to that stage, PSA becomes one part of the picture, not the whole picture. And I'm really not sure why 203 would rule you out of anything.

    I know it's difficult - I remember my 6 weeks of waiting - but  once all the tests are done, there will be a multidisciplinary meeting where they all look at the results, then all the options available  to you will be offered.

    Hang in there!

    - - -

    Heinous

    If I can't beat this, I'm going for the draw.

    Meanwhile, my priority is to live while I have the option.

  •   i would assume that because your psa is high the assumption is you have a larger prostrate which could cause issues in surgery. It's a question to ask though.  

  • Thanks Heinous and YoungMan I have an appointment with urology next Wednesday so I’ve just got a week to find out a lot more . Thanks for advice and questions to ask.

  • Hi Tony

    It’s good it’s not in your bones, the more information you get when you see your team the better, ask as many questions as you can, write them down, I had a PSA of 893 but it had got into my bones, but still here nearly five years later, so whatever you decide or they decide, hopefully it will be in your favour.

    stay safe

    Joe

  • Thanks Joe my spirit has been lifted after reading  your message, one of my concerns is my quality of life post treatment if I may ask how has yours been in the last five years, take care Tony

  • FormerMember
    FormerMember

    My recommendation is not to go for surgery, if possible, because there's a great chance (25%) that you'll be left with permanent incontinence problems. Who would want that? As Heinous says, radiotherapy is just as curative as surgery. I was 4 + 5 Gleason aggressive tumours (with, fortunately, clear bone scan like you) and the 6.5 weeks of daily radiotherapy has successfully nuked the cancer.

  • 25% chance of permanent incontinence is not what anyone would want, that’s a big number. I’m seeing urology Wednesday and still haven’t got a clue what I’m going to do,  Thanks for the info…

  • H Tony 

    Surgery can result in ED or urinary issues . 

    People sometimes think that if they have surgery that will get rid of the cancer once and for all.  But sometimes not all cancer cells are removed and the cancer can return or there are already microscopic amounts of cancer outside the gland. In those circumstances Radiotherapy will probably be required as well.

    Radiotherapy is a good way to treat PC , only thing is, treatment is longer especially if u r on HT as well.

    Having said all that there r people out there who have had the surgery and no problems.

    It is a difficult decision but try and read up as much as u can and u can always come on here with any questions.

    Good luck 

    Steve

  • Thanks Steve 4 info let you no what happens after Wednesday cheers mate.

  • Unsure where you got 25% from

    I had surgery and continence is fine. Mine had spread unfortunately so post surgery psa was 1.7, radiotherapy relies on nadir values, think it would be missed post radiotherapy until the cancer had grown more in my ribs. Therefore surgery isn’t totally negative, radiotherapy after surgery possible, surgery after radiotherapy is very difficult 

    look on prostrate cancer uk site

    https://prostatecanceruk.org/prostate-information/treatments/surgery

    just be happy with whatever you decide