Hi to everyone on here

Sorry to hear about your diagnosis, it is not all doom and gloom, just look at Stephen Fry the comedian, his Gleeson score was 9 and he is still around and kicking. The only thing you have to do is stay positive, I know at times this may not be easy, good luck with the treatment.

Hi

Not the kind of news you like hearing, Iam a Gleason 9/10 and still here after nearly five years. There’s plenty of treatments out there, just hope ones there for you. Like you I was diagnosed to late, kind of makes you angry when you have so many tests and they don’t pick up on the PC.

Still the cancer teams are great once they know what their dealing with, so hope they sought you out pronto.

stay safe

Joe

Hi!

Once you've had all the investigations, there will be a multidisciplinary meeting where the whole team - urologists, oncologists, pathologists, radiologists, nurses - will dicuss that week's 'new prostates'. They will confirm the diagnosis and discuss treatment options, and you will be offered the ones deemed most appropriate. The earlier your cancer, the more likely that there will be more than one option!

It's also well worth reading the 'toolkit' for general advice.

Hi Whatashock, I was diagnosed in January with grade 5 and a Gleason score of 9, have been through all the examinations you are facing, and yes you will feel like you are in a big black hole, I no I did, now just a few months into treatment a My condition is stabilising, and things are much clearer and brighter,

All the best

Ulls

Hi Ulls

Its good your more up to speed with what’s going on, like I’ve mentioned it’s a fair old shock to the system, but that’s why we have cancer centres and very helpful people working there.

Just keep being positive, a cure may be just round the corner, new drugs coming out all the time, plus many different trials.

stay safe

Joe

Hi joeven, thanks for your message,as usual very uplifting, when I was first diagnosed the urologists said because the cancer had spread to my bones I would be lucky if I had between 6 and 24 months.  When I went to pickup the Enzlutamide tablets the oncology nurses said they had patients with the same cancer as I have for years, this was backed up by yourself and the other guys on this site, a great relief to my wife and I. Many thanks

Ulls

Hi Ulls

No problem, you need to talk about anything, we are always here to help, hope your wife is a little less stressed, my wife after all my time with it, worries if I walk up the stairs bless her. 
Stay safe

Joe