Post chemotherapy what happens now

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Hi, my partner was diagnosed with stage 4 prostate cancer in the summer and finished Docetaxel ( 6 rounds) a couple of weeks ago. He meets with Oncology consultant mid Feb and it seems a long wait. We know that he will always have to take hormone tablets, his hair will probably grow back and he may get stronger over time. But at 63 he feels quite lost now not knowing if he can return to work in a different capacity,  or whether to ask to retire on medical grounds. He loved his job but not knowing how much he will be able to do, for how long, makes decisions really difficult doesn't it. It would be good to hear other people's experiences and views about coping with the uncertainty. We're trying to stay positive and want to book a short holiday somewhere warm but will of course need to find out about insurance. Also he's never been given a 'grade' of the cancer, do you always get this? Maybe we haven't interpreted the info properly! Thanks. 

  • I’m amid the same issues and I’m 61. A phased return will be what your GP will put on the fit-note and that will be as your hubby requests.

    As for the time he’s had off and the jobs he can now do, that’s not for me to say. I don’t know what work he’s in?

    Your hubbies “grading” is Stage 4 by the look of it and the (holiday) insurance questions will be about treatment and pills, prognosis and such things. Phone them because the online forms will not be easy to fill in properly. At least that’s what I’ve found.

    My SSP was the only sick pay so it’s been hard to deal with life away from work. The need for work is still there for me too but even with a part time work as a phased return only HR and your Hubby can work out how much he can do and for how long. It up to a discussion and you fit-note to frame any return to work.

    Could you fill out your profile page (press the green round disc with a sofa on it) because then we can see his history and treatments and give better replies to your questions.

    Good luck

  • Hello  

    A warm welcome to the group although I am so sorry to find you joining us.  Let me split my reply up into various answers to your questions.

    * Now your husband has completed his chemotherapy, there will be a follow up meeting with scans and a PSA test to see how well the treatment has worked and to discuss any lingering effects of the chemotherapy.

    * As for work - Cancer is legally considered a disability under the Equality Act 2010 offering lifelong protection against discrimination and requiring employers to make reasonable adjustments even if you are in remission or finished treatment. SCOPE are knowledgeable about your rights and you can contact them Monday to Saturday 10.00am to 5pm on 0808 800 3333. There is also the Citizens Advice Bureaux. Your husband will be aware of his reduced capabilities and can discuss this with his employers.

    * Your husband should have a TNM Score and a Gleason Score from his biopsy (Mine are T3aN0M0 and Gleason 9 (5+4) as an example) plus a note of his PSA score on diagnosis. This will be needed for travel insurance.

    * Travel Insurance  - we do have a group for this and here's the link you need:

     Travel insurance forum for cancer patients 

    however my fellow Community Champion Derek ( specialises in this subject - I have "tagged" him to this post and he will be along shortly with some advice (he's on holiday himself - somewhere warm at present).

    I hope the above helps = please do come back to me with any questions - nothing is too trivial.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • The NHS app, if you don’t have it I would recommend it. You can get an access code from your GP surgery. The letters to and from your GP and hospital should be there. If they are not you can ask the surgery to add them. Then you don’t need to remember what the details are. You look them up as often as you want. 

    Also information on appointments both GP and hospital, along with names and phone numbers is all there. 

  • Hello John ( 

    Just for information, the NHS App only works if you are resident in England (Scotland, Wales and Northern Ireland do not pay for this).

    For FULL access to your GP records you need to request FULL access with your GP.

    Not all hospital appointments will appear on the NHS App - they MAY appear in a section called "Documents" when the hospital Urology or Oncology department have written to your GP.

    Many NHS Trusts do not use the NHS App but use other Apps such as "Patient Knows Best", "My Chart" and "Airmid" to name a few.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • It’s a UK government app I don’t think you can pay for it. It is only for UK public health services. 

    For information as of last month 87% of hospitals now enable access via the app. That’s up from 65% a year ago. Those yet to implement it will. The government is committed to every patient having access via the app as part of the 10 year plan. Any public health provider will be required to provide access as part of the removing inequality in healthcare services. 

    The intention is widen the scope so that healthcare is as easily managed online as ordering a pizza.