Some advice?

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Hi Everybody,

it's been a long time and I hope everyone is doing well, this group helped me so much when my dad got diagnosed 2.5 years ago with stage 4. 

My dad was diagnosed with stage 4, metastatic cancer. 
PSA 282 T4 , spread to distant lymph nodes, Gleason 9. 

He has been doing well, he had 6 rounds of radiotherapy, is on ADT and Apalutamide. He also takes venlafaxine for hot flushes.

His PSA hit undetectable within the first 3 months and is stil undetectable last check up in November 2025. 

He had MRI 9 months ago and was told he had an excellent treatment response and all cancer cells were active and were asleep. 

My dad is 73 and is still working as a plumber and will not retire!

However the last month or so he keeps having dizzy spells? So now I'm worried, could it have spread to the brain ? Would this happen if psa is not being detected now. 
Could it be the treatment? Or has anyone else experienced this. 

my dad won't let me speak to the doctor or consultant as he is worrying he will have to stop work, I'm really worried, I just had a baby he is 7 weeks old and am getting married in December and praying my dad will be healthy for it! 

just wanted some advice as a worrying daddies girl. 

many thanks xx 

  • Hello  

    Thank you for your post and congratulations on the arrival of your baby.

    We are not medically trained but I suspect the dizzy spells are not connected to dad's prostate cancer. He should have been told by his cancer team that even though he is doing well with a PSA that is undetectable to report any changes in his health to them. He needs to do this to both his cancer team and he needs to speak to his own GP, so the cause of the dizzy spells can be investigated.

    As we men get older we think nothing is wrong with us - I am 70 and if I jump up out of a chair or get out of bed quickly (not much chance of that!) I can go dizzy as my blood pressure takes longer to adjust from sitting to standing. I would say it's just old age BUT he needs to get it checked.

    Best wishes - Brian.

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  • Hello   If you haven’t already seen it, here’s a link to the NHS web site covering dizziness…

     https://www.nhs.uk/symptoms/dizziness/   

    I would suggest, as a minimum, a blood pressure check at his GP or a good pharmacy ASAP, and maybe arrange an age-related ‘MOT’ at his GP as well? Fixing the dizzy spells should help him continue working safely. Ignoring them might not.

    I take my hat off to anyone still enjoying working at 73. That, and his undetectable PSA, is great to hear.

  • Hi  , I am really pleased to hear that your dad’s cancer is responding to treatment so well.  We keep saying on here, that we are all different in how we respond to treatment but he seems to have a great response to HT which bodes well.  Hopefully drugs will keep him in this state for many years.

    My personal view is that dizzy spells are not related to the PCa but maybe as a result of treatment or an entirely different issue.  I can see and understand why he is anxious to keep this quiet and mainly it is his right to do so if he wishes.  However, if he is driving and the ‘dizzy spells’ could impact his and more importantly others safety then that is a completely different issue.  Obviously we don’t know what form the dizzy spells take, ranging from just feeling dizzy standing up - all the way to blacking out!

    I would try and encourage him to seek advice.  Congrats on your new baby and dad will be around at your wedding, don’t worry!

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • Dizzy spells are not likely to be caused by cancer, more like Blood pressure from sitting to standing. It’s a heart of lungs issue and easily diagnosed by a GP. Get him down the doctors, if you can.

    Good luck

  • Thank you, he is just going dizzy standing up and then feels like he has to sit down. He doesn't get it the other way round he says. 
    It's all so scary! Glad you're doing well xx 

  • Hi, 

    The Apalutamide makes his blood pressure high, he is on 5 different doses to manage the blood pressure, however maybe it just needs to be reassessed. 
    Oh yes he won't give up work, he was the oldest person to Re do his gas safe course at 70 and he is adamant he is going it again this year at 73!!

    Thanks for the reply I hope you're doing well x 

  • David, (mr hope!)

    im so glad you are doing well and pray you continue to do so!! Im thankful for your kind message as always, you always make me feel better! 

    Thankfully he doesn't drive he has a great young guy he works with drive him around, I defo wouldn't let him risk himself or others, I was just more worried about potential brain spread. He also has asbestosis where he build a hospital many years ago, so that is another worry! 

    I'll try have another chat with him, and thanks again all the best to you and family xx. 

  • Hi, 

    Thanks for the message, yes he is on lots of blood pressure tablets but maybe I need to get him re assessed he is just stubborn! 
    I hope you're doing well and continue to do so xx