It’s me again :)

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Hello lovely people , I’ve had a emotional day today to be honest looking at dad how thin he is and how he can’t walk properly due to loosing so much muscle off his legs , it’s sad and hits me hard when I see his little frame wobbling to the toilet and back like a very old man Disappointed

it’s been a week and 3 days since mri not heard nothing ,rang twice as you all no and they say nothing has come through yet which is also making me so so mad because dads now nearly 17 weeks with no treatment or anything ! So he’s getting so frail due to the bone mets in his spine and hip :( god knows we’re else it is now 

I can’t shake of the negative feelings now because I’m getting no we’re , I do have a card with a lady’s name on it she’s a cancer nurse she must of give it my dad at a appointment when he was well enough to attend that is . 

im going to have to ring her I’m getting really worried and I need answers for my dads dignity and for my sanity and mental heath 

he’s got full bloods next week and urine test 

thankyou - chloe 

  • Hello Chloe

    You need to start going through the hospital help system. First off you need to contact the hospital PALS office. (Patient Advisory and Liaison Service). You need to tell them what the situation is, tell them Dad is very ill, you have anxiety and you need some answers.

    You also need to tell them if they don’t come up with any answers quickly you will escalate the matter as a formal complaint to the hospital management.

    Sadly in this day and age if you don’t act to advocate for dad he will just get left in the system.

    I did in a previous post suggest you join our carers only group - here’s the link again-

    Carers only forum 

    You will find if you post on there - plenty of advice to help care and feed dad.

    Best wishes - Brian.

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  • Wow do I really need to do this, I was thinking of ringing the doctors but they only say it’s with the consultant 

    I’m wondering if there would be any way to make a phone call appointment with dad’s consultant himself and stress how ill he is and that we could do with some results to move forward asap ! I’m just so worried he’s going to get so weak and give up :( that’s how I’m thinking now because no one is pushing him along only me 

  • Hello Chloe

    You need to act for dad, his health is going downhill and everyone is treating his case as routine. He needs help and he’s not getting it. Sadly you now need to use every avenue open to you to move forward.

    I’ve seen this happen before and you are getting to the point where no one appears to want to take responsibility for his health.

    10 days since the MRI (OK we have had New Year).

    17 weeks with no treatment.

    To be honest (and I had to do this to get an issue my wife had when she was in hospital resolved) I would be tempted to contact your MP and ask for help.

    You need to politely rattle some cages and make it known you want some action.

    Best wishes - Brian.

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  • Funny you should say this , my mp in this area is my next door neibour and life long friend to my family x 

  • Hello Chloe

    Well “that’s what friends are for”. 

    Go for it - you have nothing to lose and MP’s just love getting involved in a case like Dad’s.

    Best wishes - Brian.

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  • The thing is I always feel guilty because my dad says don’t do this don’t do that , don’t ring anyone but that’s really selfish in my eyes and he’s hurting me by saying it , because he’s not coping obviously and he will end up well probably on end of life if this carries on because of how weak he is 

    so I have to act it’s my job ! X 

  • Hello Chloe

    ”So I have to act it’s my job”.

    And you will feel great knowing you have done your best for Dad. He needs you to be independent now and get him the help he needs.

    You are doing great as it is - but you need to push on and get him the help and treatment he so desperately needs.

    Crack on tomorrow girl - you are Dad’s girl and you are doing it for him.

    Best wishes - Brian.

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  • That’s so lovely of you thanks so much ! I’m ringing the consultant once more tomorrow see if I get anywhere if not I’m following the routes you have told me to do 

    thankyou so much 

    Chloe , I think you already no I’ll be intouch ha ha 

  • I may be wrong but I think the consultant will only really be interested in the cancer diagnosis and treatment. Your dad’s non-eating, weakness and lack of mobility issue is his GPs responsibility to deal with. Failing that I think I would call 111 and explain the situation clearly to them and see what they say. Plan it out first, Good luck.

  • Waiting for treatment nearly 17 weeks on … unfortunately and he’s had all necessary tests done just waiting on mri results apparently… x 

    thanks for replying