Well Christmas Day was lovely with dad he opened presents from his bad as he point blank refuses ( and I don’t think he can walk that much due to pain ) get out of bed
so he liked his presents but was very tired afterwards, he ate half a turkey dinner and then a tin of rice pudding and drank cups of tea , very alert and on the ball
but since that he’s been really tired lathargic and just wanting to sleep , not really been eating or drinking that much to be honest , mum went this morning he said he had a bad night with his spine pain
ON TUESDAY HE HAS HIS MRI SCAN and I will honestly be so so shocked if they don’t call him back in or even let him go I’m almost certain he’s having spinal compression of some sort or something is not right with his spine , when he gets up to walk to the toilet he leans to one side now and it’s just shocking to see his down hill he’s going
I’m hoping it’s treatment after this of some sort and someone can help with his eating I really do because it’s my last hope !
Dad has prostate cancer spread to hip and spine ( 3rd vertebrae)
Chloe x
Good afternoon Disneylandb3ad46
Sounds like your dad had a bit to eat which is good especially a tin of rice .Hopefully you will get answers after Tuesday quickly . Pain drags you down for sure and once they get his pain under control he will feel like eating .
remember you need to take care of yourself .
best wishes for Tuesday and let us know how it goes
Liz & OH xxx
Thankyou for your reply just when I really needed it , some days I think oh dad your having a good day but days like today make me really anxious scared and I think I hope dads going to be ok , I hate it when he doesn’t eat it scares me because he’s lost a lot of weight and I think anything down him would make me happy !
he just said he’s in pain with his spine , but no one can do anything until after Tuesday, I mean I just hope they can start to offer him something after Tuesday as it’s been 15 weeks and he’s getting no better :(
I just keep thinking he won’t will he because he’s not getting anything for the cancer as such just morphine when pain is bad like today
thankyou xx
The only thing I can say is that you’re doing great.
I’m stuck in bed due to being a wazzerk on Xmas day and ending up in A&E, my fault entirely. Try to give him the impression that things are at a start point and the spread to the pelvis or lac bones, ribs and spine is very normal.
Checks for compression on his spine will be done and reported on, with the prospect of steroids and pain killers before any thought about radiotherapy for particular areas of concern.
You are in the bit of waiting that nobody likes so use the time wisely.
Good luck
Hi I don’t like saying I understand .BUT I do as my dad had lung cancer and it’s sooo hard watching them suffer.
we always expect dads to be there when you fall but it’s total turn around which nobody expects .
Your dad’s consultant has been in the ball and I think if he has a compression/ or anything that causing him pain , he will be seen really quickly.
you need to take time to breathe so you are ready for Tuesday too . Sending you a big hug .
Liz & OH xxxx
What happened with you ? Sorry to hear you was in hospital, I just keep thinking he will have his off days , I’m almost certain there has to be some sort of compression going on there had to be for him to be in such state !!
a little bit of me is thinking he’s really scared for this mri , he’s not been the best with appointments etc but he knows he’s got to attend this I’ve organised patient transport and he literally had to go come what may , because we can’t move forward without this it’s vital , he’s had eveything else we’re just waiting for this spinal examination from MRI , then I’m hoping for movement and answers and medication
paracetamol and the off but of morphine isn’t helping him get out of bed or eat
I want my dad back !!!!!!!!! If that can even ever happen now
Yeah I’m 32 I’m really close to my dad and seeing him go from this big hero to not even been able to walk is so hard and strange for me to get my head around, he has to attend this appointment on Tuesday come what may he has to because otherwise we can’t move forward for treatment or medication nothing !! I mean if he can’t attend on Tuesday they are surely going to have to admit my dad to hospital or do something for him surely
We all want you to have your Dad back too.
Pain relief is tough to get right but when it’s right you do feel like yourself again.
Enjoy what you can of Christmas with your friends and family and avoid stepping backwards off of a dining room chair as if there was a step behind you. I bumped my coccyx, elbow and top of my head. Oops!
Stupid, Stupid, Stupid.
I’m very lucky not to be hospitalised but somehow I flew and bounced. One of my lives lost.
Good luck
I will Let you all no how my dad gets on , on Tuesday thankyou you lovely lot for picking me up when I’m feeling down or even confused as to what is happening
also making me think that this is probably all normal roll on Tuesday roll on
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