Scans

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Hi, im 65, never had a day's sick in 48 years. Don't drink or smoke, weigh 9½ stone and run 8/10km a day. This illness can get ANYONE.

I had no symptoms  but my wife decided to book a blood test. Good job she did as came back PSA 37.

After biopsy diagnosed with Gleason 8(4+4), Pi-rads 5, and T3b.

My consultant requested a PSMA PET scan, but three weeks later, I was told NHS funding wouldn't cover it, so I need CT and Bone scans. Firstly, are these two scans anywhere near as good as the PSMA PET scan? We have already " wasted" three weeks abd my wife is also worried that the cancer is spreading. If we wait another three weeks then wait for the SMDT, this will lead s to 2026 before anything is done.

Is it worth paying up to £4,000 for the PSMA etc myself? 

My wife is worried,  we both have difficulty sleeping and after 46 years married,  we have started squabbling over ridiculous things. 

Everything went so fast at the start. Within a couple of weeks, I had the envious task of:- the finger, blood test, MRI, further blood tests, biopsy,  etc and now all stopped! 

Im sorry if this is a waste of your time, but any advise would be great fully received. Thankyou.

    • Thankyou Liz. I will tell my wife about your lovely response, if she stops telling me off obviously,  haha. I appreciate the helpful message and information x
  • Hi Percy,

    My husband started his journey February this year and it’s been a rollercoaster ride. Len’s PSA was 39 and went up to 44. After Len’s biopsy he was diagnosed with Gleason 3+4 T3b grade 5. He was put on Relugolix and Tramsulosin also vibegron to help him pee.
    He then started his 20 days of radiotherapy in September, 6 weeks after radiotherapy had finished he had an appointment with his oncologist and his PSA had come down to 0.11 they do not want to see him until May next year.  

    By the way Len was 67 when diagnosed.

    good luck and best wishes

    Jan

  • Hi Jan. Thankyou so much for your response. It really is very kind of you. Due to the lack of NHS Funds and the cancellation of my PSMA PER scan, I have JUST had my CT scan today ( Sunday) and Bone scan last Thursday. Only time will tell. Its nice to know thst im not the only one. I appreciate you contacting me, and hope Len continues to improve. Regards  Ian