named nurse

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Good morning,  it was brought to my attention recently that some cancer patients have a named nurse, is this common practice? and if so, how do I get a  named nurse?

many thanks 

  • I’ve had a nurse called a Specialist Cancer Nurse who is the bridge between me and the Oncologist. Is that what you mean?

    Its given to you for all your communications and sometimes F2F meeting too.

    Good luck

  • Hello  

    I think it depends on your Health Authority and how they work. 

    For Urology I was under Manchester University Trust and was given a named nurse (CNS Cancer Nurse Specialist) and her telephone number from day 1.

    Once I was transferred to oncology - The Christie NHS Trust - and put on their prostate self management system I had 2 named CNS's again with a contact telephone number.

    I would question this with your team.

    Best wishes - Brian.

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  • My partner has advanced prostate cancer and has a specialist nurse who only works with advanced prostate patients. He also has a nurse consultant (apparently only few in England) who prescribed his darolutamide, reviews blood tests, can order scans, do pretty much everything that an oncologist can do.

  • I have had a contact number to call should I have any worries or questions. Although that number is delivered to an answering machine that I understand belongs to a small Urology team a call to it will result in a returned call. In my case normally from the same nurse or another of the team if she is not on duty.

    I was given that number as soon as I began treatment under the urology team.

  • Thanks Mr U,  In old terms, a medical point of contact, sorry a F2F meeting? 

  • thanks Zhenya - I see my oncologist in a couple of weeks time and will raise this with him 

  • that rings a vague bell Osca, I may well ring the local MacMillan office. 

  • I have spoken to my CNS a few times on various subjects and always find her very kind and helpful. It may work even better for me as both her and us are motor caravan users and own the same marque.
    I hope that you have the same service from your health authority.