Does anyone in the group have prostate cancer that has spread to the hip and spine ? My dads been diagnosed and I’m finding things really hard at the moment as he has been to I’ll go attend his ct scan and biopsy and I’m really worried , I have had gp out to him as he’s took to his bed after getting the news of having cancer and is very depressed and in pain , he seems to pick up one day then we’re back to square one the next ! Very difficult as I’m not a nurse but he wants me to do everything, I love him dearly and I just hope he can attend his appointment asap
thankyou x
Hi sweetheart, my cancer has spread to the spine, pelvis, ribs, femur and lung. But I'm doing ok as I've been on my journey over 3 1/2 years, whereas it's all new to your dad, and it's a frightening place he finds himself, a place familiar to many of us, so hopefully once everything is known and treatment begins things won't seem so bad. My friend, if you believe your dad has to be in bed, then that's fine, but having him up and doing a little activity to help his fitness, will be a big plus for when treatment starts. I hope his scan and biopsy bring the best news possible, and dad makes his appointment.
Eddie xx
Hi and welcome to the place you will find support.
we will help but you can talk to people that are trained to calm you and govern you good advice through Macmillan.
As for the disease you’re about to find out loads about it’s a cancer that we all live with and very rarely die of but will often die with.
I have mets (metastasis) in my spine, hips and ribs which sometime ache, but with pain relief are very manageable. My over three years has been ok and the trial I was on was helpful for me and others in the future and interesting to me to know more about my cancer.
The biggest fight you and your Dad will have is in you mind. Talking is a must, having bad days is inevitable but there are ways to manage those and enjoy all the better days. This is a slow disease in the main but we all want answers now. This minute. So patience is the best policy but understandably hard to find. But as you learn you need more answers and that’s when you can ask here. This is anonymous and free and full of guys and galls that have so much experience of what you’re going through and will govern you great advice. Especially the forum Champions who can give more official and detailed information.
So please remember you’re not alone. Wether or not your Dad has a partner or not, if you are the main carer or not, this is a safe place for you all to get help from.
Start by talking to a friend, family or a professional, whoever you are happy to talk with, you will need to let out your worries and frustrations. Do it here too. We are here to listen to your worries.
Take care, both of you
Hello and welcome, you will find lots of helpful support and advice here. My partner has bone spread to hips, spine, ribs, shoulder and leg, he was initially in alot of pain before diagnosis but hormone therapy has taken all the pain away apart from a few niggles if he is sitting for long periods etc. Hopefully once he starts treatment he will be more comfortable and some of your stress will ease. Take some time to read profiles by clicking on the avaters.
All the very best to you and dad
Thankyou for this positive feedback , it’s really reassuring to see that other people have or feel the way I do with dad being so ill ,
he got diagnosed through a X-ray he has only had one or 2 hospital appointments were they put him on bone strengthening tablets and the other one was to check his prostate that’s it , they have sent him 2 letters one for his biopsy and one for a ct scan but at the moment his pain is completely wiping him out unfortunately he’s house bound and to be honest I’m doing alot for him , he’s lost alot of weight but he was only thin anyway really , well he’s 10 stone his biggest was 12 but he’s only a small man , I’ve seen a difference in him over these past few weeks and I’m so worried I honestly don’t no what to do next , I mean if he can’t get to his scan due to being so weak I don’t no what we can do moving forward, he got a text today the gp wants to see him on Monday but dads asked if I can ask if they can come to him
do you think they will ??
oh he’s had his psa bloods done aswell which will be back now but I do not have a clue what numbers are what so even if I new the results I wouldn’t no what they meant :/
we really really need dad to have this scan and biopsy I’ve even had a gp out to him who said he didn’t think dad needed to be in hospital at all but he did have a urine infection ( which has gone now ) but what they didn’t see is when dad tries to walk he’s in that much pain he can’t … he’s got a cathator in which has been a big help to be honest , I’ve give him a good shower today and a good talking to cleaned the flat and changed his bedding but we seem to have this good chat he has a cry I go home and then it all starts again the next day with how he is in pain , struggling to eat due to pain and that he’s so sorry he can’t make his appointments but he doesn’t feel strong enough physically and probably mentally to
if anyone is reading this and can give me some advice on what I can do next I would really appreciate it
thankyou x
Hello Disneyland,
So sorry to see you have had to join this site due to the circumstances you have found yourself in with your dad. Although I can't offer any specific advice on what to do next, this reply will bump your post back to the to again & I'm sure someone will be along shortly who will be hopefully be able to point you in a more positive direction.
This is obviously an extremely worrying time for you & you need to ensure that you are looking after yourself as well, as your dad will need your strength & support in his journey. May I suggest that you give the Macmillan support line a call on 0808 808 0000 as they offer confidential support to people living with cancer as well as their loved ones (you). They are open 7 days a week 8am to 8pm.
Best Wishes
Brian
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