Back in limbo..I think!

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Hi,

My husband was dx with prostate cancer a few years ago, then last year he had to have radiotherapy and hormone treatment....PSA went down to 0.1.... fast forward, he had his 2nd pass test last week, it had gone up to 1.98... he was booked for a telephone appointment today,...few hours before the call was due, it was cancelled until the 14th October....Rage... so, we have to wait to hear next steps. The thing is he is still being monitored every 8 weeks for head&neck cancer T4..he was diagnosed with in 2023....it all feels too much. Any advice would be very welcome.

Thank you

Kitkat

  • Hello Kitkat ( 

    It's unfortunate that the call today was cancelled, and it's almost 2 weeks to 14/10.

    The "normal rule of thumb" before intervention is 3 consecutive PSA rises or a rise of 2 whole points. As he's almost on the latter I would think a scan would be the order of the day to find out just what is going on although the PSA reading is quite low and they may wait another 3 months as any change may be undetectable.

    Sorry i can't be more positive and i may be wrong. Please do let us know how he gets on on 14 October.

    Best wishes - Brian.

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  • Hi Millibob,

    Thankyou for your speedy response . It seems like we're  on continous roller coaster doesn't it?... I was looking back to one of my husbands reports earlier...I have no clue really what it means, I.e. is it the type that is high risk of reoccurrence?... is the " better type" etc.....could you look at this for me? 

    Thank you in advance.

    I trust you are keeping well.xx