Hi , my husband has metastatic prostate cancer in bones, ribs, femur and spinal cord compression effecting functioning in bowel, bladder, legs. He cannot walk. His legs are very swollen. OT has told us he has lymphoedema. He had trouble with catheter for the second time in as many months, trauma from moving, rolling or being hoisted or UTI. Antibiotics given, again just in case. He is very tired, exhausted even and having random mutterings to himself.
he loves his food but over the last week or two he has lost his appetite, he is eating but not his usual self.
I am really worried about him. Community nurses, carers and physio don’t seem overly concerned. Could these changes be due to UTI or something more serious. I have tried to talk to our local hospice living well service but when I phoned nobody was available to talk to me. Feeling distraught with worrying about my husband.
Hello Teatowel
I agree, the changes in his appetite could be caused by his condition and also possibly by his medication - I think you need to raise this with his team again as it's very important to maintain an healthy appetite.
With an indwelling catheter it's important to keep everything as clean as possible to avoid the possibility of a UTI.
Feeling distraught with worrying about my husband.
I can understand your feelings at this time - do you have a "Maggie's" near you where you can call in for support - link here - "Maggie's". You can also give our Support Line a call on 0808 808 00 00 (8am to 8pm 7 days a week).
You can also join this group on the community (link here)
where you will find help and advice to help you with your husband.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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