Hi folks
Have just joined the group. I am due to start treatment (Radiotherapy) for the above later this week. Although, I have yet to sign off the treatment plan.
I have just discovered that the people who are leading the radiotherapy have never encountered a case like mine before - I know it is rare.
They have offered two types of treatment - basically one has a much stronger level of radioactive intervention.
They have flagged that either of these could damage my rectum and bladder.
Not particularly positive!
I did ask whether they had sought any advice from any national experts - they have not so far - but I think would be willing to do so.
Has anyone got any experience of the above and any thoughts to share?
I should add that it has not spread anywhere else and I have been on testosterone blockers for approx 6 months so have a very low PSA.
Cheers
Hello laverick551144
Welcome to the group, although I am so sorry to find you here.
I am aware that you have an aggressive form of Prostate Cancer and wish to start Radiotherapy as soon as possible. Off hand i can't think of any Community members with the same condition, that's not to say there aren't any.
My only thought that might help is a gel called SpaceOAR - this can be inserted between the Prostate and the Rectum to help prevent damage to the latter during the Radiotherapy. i am aware that some NHS Hospitals are able to finance this protection.
I hope this helps - please do let us know how you get on.
Best wishes - Brian.
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