Early path but not fully diagnosed with PC at 41

Hi, first post. 

im 41 and have been undergoing investigations for loss of sexual sensation for the past 2.5 years. This has been a long drawn out process with many cancelled appointments to this date. 

In between this I had an episode of frank hematuria which they were concerned about which led me down the pathway of suspected bladder cancer, with the blood clearing up after 2 weeks and further referral for diagnosis this was ruled out.

i had further scans of pelvic and prostate which is where things started, but whilst the pelvic scan came back as normal, the prostate area came back with and area of concern confirming a lesion found and they booked me in for a biopsy. At this stage I had no information from the NHS. I was told we only have an appointment more than 2 weeks away and they were sorry for the delay. This was booked but then I had a call to say they cancelled the biopsy.

I was extremely worried at this point and communication had been poor and had to escalate to get information out of them. I managed to get a call from the secretary stating that the reason for cancelling the appointment for biopsy was a consultant had reviewed the information/scans and recommended a further scan in 3 months. What I understood from them that the lesion had a PI-RAD score of 3 (refer to later in this). 

so I waited nervously for a date for a second scan, which was on 29/04/26. I had a follow up call to say that it was recommended that I see a consultant to discuss the scans and potentially a biopsy. I met with the consultant earlier this week and he seemed optimistic due to my age mainly and that his opinion was in 20 years I would be the second person of my age group he would have diagnosed if that were the case. 

now as I previously mentioned I thought I had a Pi-RAD of 3, but I was told it is a 4/5 and always has been. The scan on 02/01/26 measured 18mm and the one on 29/04/26 19mm. Throughout the past years where I have had PSA tests they have always been under 1, my latest one was 0.87.

notes from review by consultant - Multi-parametric prostate. Comparison made with previous imaging dated 02/01/2026. PSA 0.81 on

01/04/2026.

The prostate measures 31 x 28 x 44 mm = 22 cc = 0.04 PSA density.

Preserved well zonal delineation. The peripheral zone remain heterogenously low T2 signal with a

persistent ill-defined focal region of mild restricted diffusion involving the posterior lateral right PZ. It

measures 19 mm (previous 18 mm) and continues to broadly contact the capsule. There is still an impression of early enhancement avidity. The region of interest is relatively unchanged. Unremarkable central appearances.

the consultants opinion was that he did not recommend a biopsy at this stage and that a further scan towards the end of the year, he was also not concerned about if I didn’t have an updated PSA test until then, my next one is or was due August. 

im not happy with the misinformation which has caused me anxiety and stress, as being booked in for urgent biopsy and then being cancelled with no information is bad enough, but the lack of information and detail has also been bad.

i left the consultants room feeling like unanswered questions and whilst it appears to be good news, it still doesn’t provide and further clarity. 

I know that now I have to wait 6 months for another scan is just throwing further worry out here for me as I know it will either be the area of the lesion is the same or has grown. I won’t have full confirmation unless there is a biopsy done, but how long should this be delayed for? 

have people had similar recommendations before being fully diagnosed with PC and how has this gone? What’s peoples thoughts on this at this stage.

i have changed my diet and lost some weight to bring myself into a good BMI as trying to everything in my power in theory of hearing the worst news.

i have suffered with ulcerative colitis for 24 years but this is what has me worried. 

I know that having a biopsy carries risks but is the only way to know? My worry is the delay between the next scan and if this is good advice? He said go and have a good summer and holiday.