I have been on the Watchful waiting regime for a couple of years. Test every six months then a phone clinic. Psa last time slightly rising to 8.5. It is always very stressful waiting for the numbers. My urologist decided that I should now have a test every 3 months and only have the "clinic" call if my Psa went over 10.2. I was happy with that but i still wanted my result. I had a test a month ago and as I haven't heard anything I assume that the result was below 10.2. I have tried to explain in the past that the wait for the result is the worst thing. It was ok when I had a Macmillan nurse that i could ring, she would tell me immediately but last time I rang urology there is no longer a Macmillan nurse and I was given a lecture from urology saying if they had to ring everyone with their result, they wouldn't do anything else. So now I am in a worse position. All they have to do is to email me the number. There is a definite lack of understanding , Prostate cancer and its progress is measured by a number, just give me the number.
