Results following chemotherapy: some uncertainty

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My hubby’s PC returned as aggressive, Gleason 9, in 2015 and has been controlled by HT until last year when his PSA steadily increased from 0.8 to 85. He recently finished 10 cycles of Docetaxel with monthly Zoladex and last week we got his scan results. 

According to the CT scan, organs and lymph nodes now all clear (good), but ribs and pelvis indecisive as the results may have been influenced by the chemo still in his system.  There’s also the mention of (quote) ‘an increase in size and number of bony sclerotic lesions, concerning for disease progression’ and the fact that, after an initial plunge, his PSA never dropped below 6.4 and had risen slightly to 7.1.  He’s due another CT scan in August. 

We felt a bit dejected and it would have been nice to have had a discussion about the results so far but we were last on the list and got the impression the doctor was anxious to go as she gave us a brief summary, gave him printouts of the results to read and digest at home, and the whole thing took 5 minutes at the most.   Hopefully whoever does his September review will be more forthcoming about a future plan, as by then they should have a more definite idea from the second scan.  Meanwhile he was just told to continue with the Zoladex. 

Well, to be fair, we can’t expect a miracle cure as we know it’s an incurable cancer which can only be controlled for as long as possible.  In fact, he’s been luckier than a lot of men with it having been under control for several years  before it began to spread and on the whole, he’s feeling quite well at the moment.  

He’s happy to be off the food restrictions now and is particularly relieved that he can for now gradually taper off the steroids.  With arms and legs covered in bruises and plasters he’s looked for months as though he’s been in a fight!  It seems that Prednisolone is a major offender for thinning skin.

  • Hello  

    It does sound like he's been through the mill with 10 cycles of Chemotherapy - and it looks like it's worked in some parts of his body so it's worth the pain.

    As you say

    he’s feeling quite well at the moment.  

    so that's a big plus at the moment - enjoy the summer whilst it's here!

    Let's hope there's good news with his CT in August and you get to have a proper chat with his oncologist.

    Thanks for the update and I wish you both well moving forward.

    Best wishes - Brian.

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  • Hi  , that is an inspirational post for any new Gleason 9 members.  Your OH has been through the mill with 10 rounds of Docetaxel and hats off to him.  Hopefully you can now both have time to recover over the summer.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • Thanks Brian.  On the whole, hubby’s got off very lightly as regards side effects, particularly with the HT but also the chemotherapy, so was able to have all 10 cycles.  His chemo team were great; no time was wasted in either prescribing meds, advising him, or just reassuring him. 

    Yes, we’re enjoying the summer (in the shade) and hope you are too, whether you’re back in Turkey or England!  We’re off  to Gran Canaria again in the autumn.

    I wish you well for your own journey.

  • Thanks David.  Must say it’s been good to get back to some normality and enjoy life again, although we did manage to get to some events during the chemo.   We’ve now booked a couple of holidays - it’ll be good to get away at last!  

    Best wishes

  • Hello  

    It's great to know he's had a fantastic team, when the NHS are good they are good!

    We are off to Turkey for 5 weeks on Wednesday and then it's a week in Scotland for the last day of the Military Tattoo when we get back. I then have a PSA test and a face to face consultants appointment mid September.

    Enjoy Gran Canaria - it's great having a holiday to look forward to. Sunglasses.

    Best wishes - Brian.

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